Living With Endometriosis

You are currently browsing the Living With Endometriosis weblog archives for December, 2008.

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My Story

• I Will Not Suffer In Silence

Definitions of Endo

• What is endometriosis?, from endometriosisassn.org
  
  
• Here's what we do know about endometriosis, from the National Institutes of Health
  
  
• Living with Endometriosis, from endomagazine.com
  
  
• What is endometriosis?, from netdoctor.co.uk
  
  
• Wikipedia definition of Endo
  
  
• What is endometriosis?, from medicinenet.com
  
  
• Endometriosis F.A.Q., from womenlivingnaturally.com

Symptom Tracking

• CureTogether.com - Compare symptoms with people like you, Find treatments that work, Optimize your health
  
  
• ReliefInSite.com - Real-time pain mapping, monitoring, analysis
  
  
• MyMonthlyCycles.com - free personalized tools to track, monitor, and manage your monthly menstrual cycles!

Products to ease pain

• HagRag - Natural cloth menstrual pads
  
  
• EndoFEMM - Microwavable corn-filled cloth heating pads (mention you saw them here and get 10% off your order!)
  
  
• Bed desk - use for books, writing, laptop, eating while bedridden from the pain
  
  

Research and Medical Journals

• Research articles posted from endometriosis.org
  
  
• Endometriosis Researchers Share Data, Unknowns, Dated 2005
  
  
• EndoZone.org by OBGYN.net - Contains many papers and interviews from some researchers and doctors in the field (requires registration, but I recommended the site - it shows how heavy-handed the Pharms are in decision-making)
  
  
• Oxford Journal of Human Reproduction
  
  
• The New England Journal of Medicine (requires paid subscription)
  
  
• American Journal of Epidemiology
  
  
• The Journal of Experimental Medicine
  
  
• Reproductive Biology and Endocrinology
  
  
• Biology of Reproduction
  
  
• American Society for Reproductive Medicine
  
  
• BioMedCentral.com
  
  
• HighBeam Research - Newspaper archives and journal articles. Paid membership but worth it!

Your Endocrine System

• Endo 101: The Endocrine System
  
  
• Environmental Protection Agency - Endocrine Primer
  
  
• "The largest web site for Thyroid, Parathyroid and other Endocrine Disorders"

Medical Papers

• Articles Reprinted from the St. Charles Endometriosis Treatment Program Newsletters

Is Endometriosis a cancer?

• Endometriosis Linked to Increased Risk for Melanoma, Dated Oct. 2007
  
  
• Age at endometriosis diagnosis is linked to breast cancer risk, Dated Apr. 2007
  
  
• Fact or Myth? Endometriosis is cancerous.
  
  
• Genetic evidence supports endometriosis as ovarian cancer precursor, Dated 2006
  
  
• Endometriosis Linked To Cancer Risk, Dated 2004
  
  
• Endometriosis cancer risk, Dated 2003
  
  
• Role of endometriosis in cancer and tumor development, Dated 2002

Endometriosis and Fertility

• Will endometriosis affect my ability to have children?
  
  
• An article about "Endometriosis Causing Infertility"
  
  
• New Endometriosis-Infertility Link Found, on webmd.com. Dated June 18, 2003.
  
  
• Fact or Myth? Endometriosis always leads to infertility.

No Guarantee of Relief with Menopause?

• Endometriosis at menopause, from cwhn.ca, 2004
  
  
• The Good News About Endometriosis After Menopause, from womanlinks.com, 2007 (not actually all good news)
  
  
• Harvard Study Examines Endometriosis Cases After Menopause, from vitabeat.com, 2006
  
  
• Fact or Myth? Endometriosis goes away at onset of menopause.

Organisations

• Endometriosis Association (EA)
  
  
• endometriosis.org
  
  
• Endometriosis Research Center (ERC)
  
  
• World Endometriosis Foundation
  
  
• Center for Endometriosis Care (CEC)

Current Treatments Available

• Surgery
  
  
• Pain Medication
  
  
• Hormonal Suppression
  
  
• Alternative Medicine
  
  
• Doctors who specialise in Endo treatment (not provided by or endorsed by the ERC or the EA)

Filing For Disability

• At The Federal Level (SSDI)
  
  
• Medicare
  
  
• State-by-State disability info - as found on EmployeeIssues.com (only 5 states offer short term disability).
  
  
• Family Medical Leave (FMLA) - can't get state disability? Perhaps FMLA might help in the short term. Info found on EmployeeIssues.com (You must have worked for 12 months at same place to be eligible for FMLA).
  
  
• More info on Family & Medical Leave Act (FMLA) (as found on FindLaw.com)
  
  
• Official FMLA website
  
  

Other Educational

• My Beautiful Cervix - Pix of a healthy cervix over one month's cycle