Living With Endometriosis

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24

Aug

At last — a quick and accurate way of diagnosing endometriosis

Posted by steph  Published in news article, research

At last — a quick and accurate way of diagnosing endometriosis August 18, 2009 A quick and accurate test for endometriosis that does not require surgery has been developed by researchers from Australia, Jordan and Belgium, according to new research published online today (Wednesday 19 August) in Europe’s leading reproductive medicine journal Human Reproduction [1]. [...]

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13

Aug

Small study shows Non-steroidal anti-inflammatory drugs do not mitigate the pain of endometriosis

Posted by steph  Published in research

I just saw this on endochick‘s blog and wanted to repost it here: Nonsteroidal anti-inflammatory drugs for pain in women with endometriosis Allen C, Hopewell S, Prentice A, Gregory D Summary Endometriosis is a common gynaecological condition that affects women. It can lead to painful symptoms, including painful periods, pain during or after sexual intercourse, [...]

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10

Aug

Tamoxifen and other synthetic estrogens linked to increased rates of endometriosis and uterine cancer

Posted by steph  Published in news article, research

Study identifies how tamoxifen stimulates uterine cell growth and cancer Public release date: 2-Jul-2009 By: Kristen Bole University of California – San Francisco UCSF researchers have identified a new “feed-forward” pathway linking estrogen receptors in the membrane of the uterus to a process that increases local estrogen levels and promotes cell growth. The research is [...]

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10

Aug

Premature birth risk for those with endometriosis

Posted by steph  Published in news article, research

In February, 2009, I shared an article stating that just having endometriosis doubles one’s risk for delivering a premature baby. Another study has come out in July 2009 showing similar results after having studied a much larger sample of women. Endometriosis and birth problems Friday July 3 2009 NHS Choices UK Women with a common [...]

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Don't Have Endo? Please Read!

  • The Letter From Survivors

  • Public Service Announcement!

  • We Are Not Seekers

  • What I Should Have Said

  • "...but have you tried..."

  • Sick Humor: The top ten worst
    suggestions commonly given to
    someone with a chronic illness


  • Our Life In Comics

Important Pages

  • Research and Medical Journals

  • Myths about Endometriosis

  • YouTube Video Blogs

  • Applying For Disability

  • Be Aware!

  • Endo and Menopause

  • Is Endo A Cancer?

  • Job Discrimination

  • Fallen Endo Sisters

Mankoski Pain Scale

0 - Pain Free

1 - Very minor annoyance - occasional
minor twinges. No medication needed.

2 - Minor Annoyance - occasional
strong twinges.
No medication needed.

3 - Annoying enough to be distracting.
Mild painkillers take care of it.
(Aspirin, Ibuprofen.)

4 - Can be ignored if you are really
involved in your work, but still
distracting. Mild painkillers remove
pain for 3-4 hours.

5 - Can't be ignored for more than 30
minutes. Mild painkillers ameliorate
pain for 3-4 hours.

6 - Can't be ignored for any length of
time, but you can still go to work and
participate in social activities.
Stronger painkillers (Codeine,
narcotics) reduce pain for 3-4 hours.

7 - Makes it difficult to concentrate,
interferes with sleep. You can still
function with effort. Stronger
painkillers are only partially effective.

8 - Physical activity severely limited.
You can read and converse with effort.
Nausea and dizziness set in as factors
of pain.

9 - Unable to speak. Crying out or
moaning uncontrollably - near delirium.

10 - Unconscious. Pain makes you
pass out.

© Andrea Mankoski

Organisations

  • Endometriosis Association

  • Endometriosis Research Center

  • endometriosis.org

  • World Endometriosis Foundation

  • Center for Endometriosis Care

  • World Endometriosis Society

Symptom Tracking

  • CureTogether.com - Compare
    symptoms with people like you,
    Find treatments that work,
    Optimize your health

  • ReliefInSite.com - Real-time pain
    mapping, monitoring, analysis

  • MyMonthlyCycles.com - free
    personalized tools to track,
    monitor, and manage your
    monthly menstrual cycles!

Endo Products


  • HagRag.com - cloth
    menstrual pads

  • Lola's Loft - cloth
    menstrual pads

  • Naturally Hip - cloth
    menstrual pads

  • EndoFEMM - Microwavable
    corn-filled cloth heating pads
    (mention you saw them here
    and get 10% off your order!)

  • Bed desk - use for books,
    writing, laptop, eating while
    bedridden from the pain

Endo Blogs

  • Amanda’s Patch
  • Autoimmune Life
  • Barb’s Bumpy Ride
  • Brandzilla, living with endo & IC
  • Canadian Girl In Pain
  • Chronic Healing
  • Cure Endometriosis?
  • Dear Thyroid
  • Endo en Vogue
  • Endo Friendo
  • Endo Times
  • EndoJoanna
  • Endometriosis Interactive Support
  • Endometriosis Journey
  • Endometriosis, Among Other Things
  • Endometriosis: Facing The Battle Head On
  • Endometriosis: The Silent Life Sentence
  • Field Notes from an Evolutionary Psychologist
  • Foxy In The Waiting Room
  • Hope Garden
  • I Will Not Suffer In Silence - My continuing Endometriosis story
  • Jenny With Endo
  • Life With Endo & PCOS
  • light at the end of the tunnel
  • Lupron Journal
  • My Healing Journey
  • My Journey With Endometriosis
  • My Life With Endo & Infertility
  • Resilience
  • Sallie Speaks
  • SansUterus
  • Squidgeaboo’s Endo Blog
  • Stuff Sick People Have To Put Up With
  • Surviving Endo
  • That Girl With Endo
  • The Battle Continues…
  • The Ins and Outs of Endo
  • The Mud and The Lotus
  • Whispered Words …
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Medical Journals

  • Journal Of Endometriosis


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Recent Posts

  • The Dangerous Panic over Painkillers
  • Early detection of endo may soon be possible
  • Vitamin D Affects Genes for Cancer, Autoimmune Diseases
  • Endometriosis in African and African-American Women
  • Interesting read on treatments doctors do not seek for themselves
  • Prescription Painkiller Addiction: 7 Myths
  • Red and processed meat increase risk of bowel cancer
  • Cautious support for aromatase inhibitors in endo treatment
  • Unbelievable doctors in the 21st century
  • Epigenetics of endometriosis
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