Nov

Examining online health records-keeping

Posted by steph Published in news article, support

This morning I read a three-day old story on NPR, entitled “Patients Turn To Online Community For Help Healing“.
In that segment, three websites were plugged: Microsoft’s My Health Info, Google Health, and Patients Like Me.
I decided to check these sites out. I was thwarted immediately upon reaching Microsoft’s My Health Info page, because it wanted [...]

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Nov

Online support groups for endometriosis

Posted by steph Published in Administrative, support

Two days ago, I was told about another online support group out there, so I want to make mention of it - it is called MDJunction. It stands for “Making A Difference” Junction.
I joined today.
I belong to a number of online support groups for endometriosis, and I check in when I can. I hope [...]

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Nov

Part II: Overpriced poison?

Posted by steph Published in news article, outrageous, pharmaceuticals

Part II: Overpriced poison?
Posted: Nov 2, 2009 03:53 PM
Updated: Nov 2, 2009 06:22 PM
28-year-old Rachelle Fenner finds it hard some days to just get out of bed.
“Right now, my face is numb, my shoulders are numb, I feel dizzy, I just don’t ever feel good.”
“It’s horrible,” says 30-year-old Mary Orseno. “It’s debilitating. I [...]

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Nov

Overpriced Poison?

Posted by steph Published in news article, outrageous, pharmaceuticals

Many thanks to Melissa Ralston, moderator of the Goddesses of Endometriosis email list, for finding this hair-raising story.
Overpriced Poison?
Posted: Oct 30, 2009 04:15 PM
Updated: Nov 1, 2009 11:56 PM
Doctors and a drug company may be getting rich at the expense of patients and taxpayers. Devastating side effects kept secret and ineffective government oversight.
It [...]

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Don't Have Endo? Please Read!

Important Pages

Mankoski Pain Scale

0 - Pain Free

1 - Very minor annoyance - occasional
minor twinges. No medication needed.

2 - Minor Annoyance - occasional
strong twinges.
No medication needed.

3 - Annoying enough to be distracting.
Mild painkillers take care of it.
(Aspirin, Ibuprofen.)

4 - Can be ignored if you are really
involved in your work, but still
distracting. Mild painkillers remove
pain for 3-4 hours.

5 - Can't be ignored for more than 30
minutes. Mild painkillers ameliorate
pain for 3-4 hours.

6 - Can't be ignored for any length of
time, but you can still go to work and
participate in social activities.
Stronger painkillers (Codeine,
narcotics) reduce pain for 3-4 hours.

7 - Makes it difficult to concentrate,
interferes with sleep. You can still
function with effort. Stronger
painkillers are only partially effective.

8 - Physical activity severely limited.
You can read and converse with effort.
Nausea and dizziness set in as factors
of pain.

9 - Unable to speak. Crying out or
moaning uncontrollably - near delirium.

10 - Unconscious. Pain makes you
pass out.

© Andrea Mankoski

Organisations

Symptom Tracking

CureTogether.com - Compare
symptoms with people like you,
Find treatments that work,
Optimize your health
ReliefInSite.com - Real-time pain
mapping, monitoring, analysis
MyMonthlyCycles.com - free
personalized tools to track,
monitor, and manage your
monthly menstrual cycles!

Endo Products

HagRag.com - cloth
menstrual pads
Lola's Loft - cloth
menstrual pads
Naturally Hip - cloth
menstrual pads
EndoFEMM - Microwavable
corn-filled cloth heating pads
(mention you saw them here
and get 10% off your order!)
Bed desk - use for books,
writing, laptop, eating while
bedridden from the pain

November 2009
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Examining online health records-keeping

Online support groups for endometriosis

Part II: Overpriced poison?

Overpriced Poison?

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Don't Have Endo? Please Read!

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Organisations

Symptom Tracking

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