Living With Endometriosis

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28

Mar

Nerve clusters without myelin sheath found as culprit in endometriosis

Posted by steph  Published in Endometriosis Awareness, research

Mysteries of endometriosis pain: Chien-Tien Hsu Memorial Lecture 2009 Ian S. Fraser Department of Obstetrics and Gynaecology, University of Sydney, Sydney, New South Wales, Australia Correspondence to Professor Ian S. Fraser, Department of Obstetrics and Gynaecology, Queen Elizabeth II Research Institute for Mothers and Infants, University of Sydney, NSW 2006, Australia. Email: i_fraser [at] med [...]

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24

Mar

Large study finds trans fats linked to increased endometriosis risk and Omega-3-rich food linked to lower risk

Posted by steph  Published in diet, news article, research

Before I post this research, I must note that people with endometriosis are born with it – but not all women who have it go on to develop debilitating symptoms. Moderating diet from birth onwards might help prevent the disease from spreading out of control, but it doesn’t PREVENT the disease from happening in the [...]

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5

Mar

A fallen endo sister

Posted by steph  Published in Chronic Pain, Endometriosis Awareness, news article, Suicide

The other day, a fellow endo blogger showed me the story you are about to read below. It affected me deeply, because I have entertained the same thoughts during the past 24-25 years I have suffered with endometriosis. Please read this story. I will be posting more about the topic. So no one else will [...]

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5

Mar

Possible website downtime

Posted by admin  Published in Administrative

My website provider has informed me that they are moving my account to a new server soon, so if this website is unreachable, it’s only temporary – it will be back soon!

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Don't Have Endo? Please Read!

  • The Letter From Survivors

  • Public Service Announcement!

  • We Are Not Seekers

  • What I Should Have Said

  • "...but have you tried..."

  • Sick Humor: The top ten worst
    suggestions commonly given to
    someone with a chronic illness


  • Our Life In Comics

Important Pages

  • Research and Medical Journals

  • Myths about Endometriosis

  • YouTube Video Blogs

  • Applying For Disability

  • Be Aware!

  • Endo and Menopause

  • Is Endo A Cancer?

  • Job Discrimination

  • Fallen Endo Sisters

Mankoski Pain Scale

0 - Pain Free

1 - Very minor annoyance - occasional
minor twinges. No medication needed.

2 - Minor Annoyance - occasional
strong twinges.
No medication needed.

3 - Annoying enough to be distracting.
Mild painkillers take care of it.
(Aspirin, Ibuprofen.)

4 - Can be ignored if you are really
involved in your work, but still
distracting. Mild painkillers remove
pain for 3-4 hours.

5 - Can't be ignored for more than 30
minutes. Mild painkillers ameliorate
pain for 3-4 hours.

6 - Can't be ignored for any length of
time, but you can still go to work and
participate in social activities.
Stronger painkillers (Codeine,
narcotics) reduce pain for 3-4 hours.

7 - Makes it difficult to concentrate,
interferes with sleep. You can still
function with effort. Stronger
painkillers are only partially effective.

8 - Physical activity severely limited.
You can read and converse with effort.
Nausea and dizziness set in as factors
of pain.

9 - Unable to speak. Crying out or
moaning uncontrollably - near delirium.

10 - Unconscious. Pain makes you
pass out.

© Andrea Mankoski

Organisations

  • Endometriosis Association

  • Endometriosis Research Center

  • endometriosis.org

  • World Endometriosis Foundation

  • Center for Endometriosis Care

  • World Endometriosis Society

Symptom Tracking

  • CureTogether.com - Compare
    symptoms with people like you,
    Find treatments that work,
    Optimize your health

  • ReliefInSite.com - Real-time pain
    mapping, monitoring, analysis

  • MyMonthlyCycles.com - free
    personalized tools to track,
    monitor, and manage your
    monthly menstrual cycles!

Endo Products


  • HagRag.com - cloth
    menstrual pads

  • Lola's Loft - cloth
    menstrual pads

  • Naturally Hip - cloth
    menstrual pads

  • EndoFEMM - Microwavable
    corn-filled cloth heating pads
    (mention you saw them here
    and get 10% off your order!)

  • Bed desk - use for books,
    writing, laptop, eating while
    bedridden from the pain

Endo Blogs

  • Amanda’s Patch
  • Autoimmune Life
  • Barb’s Bumpy Ride
  • Brandzilla, living with endo & IC
  • Canadian Girl In Pain
  • Chronic Healing
  • Cure Endometriosis?
  • Dear Thyroid
  • Endo en Vogue
  • Endo Friendo
  • Endo Times
  • EndoJoanna
  • Endometriosis Interactive Support
  • Endometriosis Journey
  • Endometriosis, Among Other Things
  • Endometriosis: Facing The Battle Head On
  • Endometriosis: The Silent Life Sentence
  • Field Notes from an Evolutionary Psychologist
  • Foxy In The Waiting Room
  • Hope Garden
  • I Will Not Suffer In Silence - My continuing Endometriosis story
  • Jenny With Endo
  • Life With Endo & PCOS
  • light at the end of the tunnel
  • Lupron Journal
  • My Healing Journey
  • My Journey With Endometriosis
  • My Life With Endo & Infertility
  • Resilience
  • Sallie Speaks
  • SansUterus
  • Squidgeaboo’s Endo Blog
  • Stuff Sick People Have To Put Up With
  • Surviving Endo
  • That Girl With Endo
  • The Battle Continues…
  • The Ins and Outs of Endo
  • The Mud and The Lotus
  • Whispered Words …
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  • January 2008 (1)

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Medical Journals

  • Journal Of Endometriosis


Awards

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Recent Posts

  • Yale researchers find gene mutation on chromosome 12
  • The Dangerous Panic over Painkillers
  • Early detection of endo may soon be possible
  • Vitamin D Affects Genes for Cancer, Autoimmune Diseases
  • Endometriosis in African and African-American Women
  • Interesting read on treatments doctors do not seek for themselves
  • Prescription Painkiller Addiction: 7 Myths
  • Red and processed meat increase risk of bowel cancer
  • Cautious support for aromatase inhibitors in endo treatment
  • Unbelievable doctors in the 21st century
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