See, this is why I have my endo sisters. Rikki emailed me to let me know about a site called End Women’s Pain. Check it out!!
Apparently, the End Women’s Pain site was launched back in May, and I did get a Google Alert about it, but I am so far behind on regular updates to this blog that I did not read the email alert. In fact, I have almost 400 Google Alert emails pertaining to chronic pain and endometriosis that I still have not gone through.
Please check out the End Women’s Pain website and then contact Congress and tell them to make positive changes in health care in order to treat us more humanely.
I’d like to share one of the points they make in their analysis and policy recommendations report:
“Due to a lack of basic research on the underlying mechanisms of chronic pain, as well as pain syndromes and their treatment, the causes of these conditions remain a mystery, and evidence-based treatment options are severely limited. Sufferers are forced to experiment with a myriad of therapies, most with unknown benefits and risks, until they find a treatment or combination of treatments to relieve some of their painful symptoms.” – Chronic Pain in Women: Neglect, Dismissal and Discrimination. ANALYSIS AND POLICY RECOMMENDATIONS – May 2010
Also quoted in their report is:
“The overall quality of treatment for pain in the United States remains unacceptable for millions of patients with persistent pain.” -Pain medicine position paper. Pain Med. 2009; 10(6):972-1000
Lastly, please subscribe to the YouTube channel – Campaign To End Chronic Pain In Women, and watch this video:
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Thank you! I haven’t seen this yet.
The beauty of this campaign’s impact is that the Senate worked in language to FY 2011 budget to advance research on diseases that cause women chronic pain, including endometriosis.
http://endwomenspain.org/press
Press Release
The Campaign to End Chronic Pain in Women Applauds Senate Committee Action to Help Millions of Women
Appropriations Plan Calls on Key Federal Health Agencies to Improve Research and Education on Neglected Women’s Chronic Pain Conditions
WASHINGTON D.C. (August 3, 2010) – The Campaign to End Chronic Pain in Women applauds the Senate Appropriations Committee for including language in its Fiscal Year 2011 Labor, Health and Human Services, Education Appropriations Bill that directs federal agencies to advance research and promote awareness of neglected chronic pain conditions that predominantly affect women. This action was taken in response to a groundbreaking report released by the Campaign in May, documenting that the National Institutes of Health invested only $1.33 in research for every woman affected by vulvodynia, temporomandibular disorders (TMJ), endometriosis, fibromyalgia, interstitial cystitis, and chronic fatigue syndrome.