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21

Mar

Fallen Endo Sisters - A Memorial Page

Posted by steph 

This page is a living memorial to women who have died from endometriosis. Comments are disabled to show respect for the departed.

Women who have died from complications due to or associated with endometriosis:

Doe, Jane: Born 1956 - Died June, 1992 at the age of 36. She had been diagnosed with endometriosis and been treated by ovarian cystectomy and laparoscopic pelvic surgery. In 1987, she was diagnosed with endometriomas in the sigmoid colon. According to the article, her gynecologist supervised her condition for another 5 years before deeming the symptoms “sufficiently disabling to require surgery”. In that time, she had undergone multiple endoscopy sessions, which showed no further expansion or growth of the lesions on her colon. However, a laparotomy on June 4, 1992 revealed “extensive pelvic endometriosis with widespread adhesions involving ovaries, an enlarged uterus, and upper rectum. There were hard spherical masses involving the sigmoid and lower descending colon causing rotation and constriction, and similar pathology was noted in a short segment of terminal ileum. Hysterectomy with excision of uterine adnexa was performed. The disease in the ileum and colon was removed with a double resection. The surgery was deemed a success, and it is noted that her “recovery in the hospital was satisfactory and uneventful. Unfortunately, 3 weeks after the operation, she suddenly collapsed at home and died. Autopsy revealed that a massive pulmonary embolus was the cause of death.

Women who have ended their pain and suffering on their own terms:

Kristi An Rose: March 11, 1978 - May 7, 2009. She had suffered with endometriosis for 12 years. “She was a graduate of Northwestern High School and attended Indiana University Kokomo. Kristi took time to enjoy the beauties that nature had to offer. The flowers, the water, the sun, the moon and the stars would make her feel at peace. Everyone enjoyed her one of a kind sense of humor, she was just that special of a person. You would know when she entered the room, she had a way of lighting it up. Fishing, music, and dancing were other activities she loved. She would photograph her friends and family, and capture their happiness. She was a fan of the arts and shared her paintings, sculptures, and drawings with others. Most of all, Kristi enjoyed spending time with her loved ones and didn’t hesitate to put their needs before her own until her physical pain became too great to endure.” - from her obituary in the Kokomo Tribune.

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Don't Have Endo? Please Read!

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Important Pages

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Mankoski Pain Scale

0 - Pain Free

1 - Very minor annoyance - occasional
minor twinges. No medication needed.

2 - Minor Annoyance - occasional
strong twinges.
No medication needed.

3 - Annoying enough to be distracting.
Mild painkillers take care of it.
(Aspirin, Ibuprofen.)

4 - Can be ignored if you are really
involved in your work, but still
distracting. Mild painkillers remove
pain for 3-4 hours.

5 - Can't be ignored for more than 30
minutes. Mild painkillers ameliorate
pain for 3-4 hours.

6 - Can't be ignored for any length of
time, but you can still go to work and
participate in social activities.
Stronger painkillers (Codeine,
narcotics) reduce pain for 3-4 hours.

7 - Makes it difficult to concentrate,
interferes with sleep. You can still
function with effort. Stronger
painkillers are only partially effective.

8 - Physical activity severely limited.
You can read and converse with effort.
Nausea and dizziness set in as factors
of pain.

9 - Unable to speak. Crying out or
moaning uncontrollably - near delirium.

10 - Unconscious. Pain makes you
pass out.

© Andrea Mankoski

Organisations

  • Endometriosis Association

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  • endometriosis.org

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    personalized tools to track,
    monitor, and manage your
    monthly menstrual cycles!

Endo Products


  • HagRag.com - cloth
    menstrual pads

  • Lola's Loft - cloth
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    menstrual pads

  • EndoFEMM - Microwavable
    corn-filled cloth heating pads
    (mention you saw them here
    and get 10% off your order!)

  • Bed desk - use for books,
    writing, laptop, eating while
    bedridden from the pain

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  • light at the end of the tunnel
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  • SansUterus
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  • The Battle Continues…
  • The Ins and Outs of Endo
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Recent Posts

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