Life update

It seems I write only every 2-5 months, now.

The reason is that I don’t feel I have anything new to add. I’m still in pain after 2 surgeries. I’m still dealing with complications of fibroids, and I’m still refusing to take hormonal or GnRH therapies. I’m still refusing to have a hysterectomy. And doctors are still telling me they can’t help me if I won’t continue to be their guinea pig.

Nothing has changed.

It’s depressing.

I’m waiting for menopause in a last ditch effort to see if my symptoms dissipate.
If symptoms do not abate with menopause, only then will I consent to a hysterectomy. Unless, of course, something life-threatening develops in the interim.

I am on Day 7 of my latest menstrual cycle. I made the mistake of drinking coffee on Saturday, which brought back the bleeding and cramping. Then it went away. Then this morning, I drank coffee again, and the pain and bleeding returned. So now I’m lecturing myself about cutting out coffee again. Ugh.

The fibroids LOOOVE coffee. It really gets their party going, I’ve noticed. So I need to stop drinking it again. This is going to be difficult, but it is necessary. Wish me luck.

While we’re on the topic of cutting out fun stuff from one’s diet, let me just state for the record that cutting down on or cutting out alcohol entirely does JACK SHIT for easing up your pain. I know, because as of this month, it has been a year and a half that I have abstained from all alcoholic drinks. And I’m still in just as much pain. So THAT dietary rule is bullshit. What you SHOULD know about that dietary rule is that drinking alcohol while in a pain flare, or near the start of your pain flare, will CAUSE your pain to spike horribly. That is why Experts tell you not to drink booze. But the way they phrase it is to cut it out entirely. What you need to do is just note your windows of opportunity, and try drinking outside of your pain flares. If that makes sense. I know some of you out there never get a respite from the pain, while others, like me, have windows of pain-free or low-pain time.