I know people need to make a living. I know there’s a food chain, even and especially where it comes to health care and caregiving.
Knowing this about people doesn’t mean I like or condone their actions.
Ever since being officially diagnosed with endometriosis, I have been seeking out alternative health remedies for my illness, because the surgery did not provide pain relief.
The biggest pet peeve I have regards what I call information hoarders.
Here we are, women suffering horribly with an incurable, debilitating disease that we were born with, and all we want is to find out what we can do to ease our symptoms.
Someone comes along and says, “I have found the secret to what works best and my pain is GONE! Click here to BUY my online book for just $23.95!” No snippet of remedies or anything, just trust this individual and buy the book.
Others come along and hawk their Nattokinase and Lycopene supplements, insisting that for only 49.95 you can CURE endometriosis!
Well get this, buddy, FIRST OF ALL, there is no cure for endometriosis. SECOND OF ALL, I am allergic to tomatoes and nightshades! Take your Lycopene and shove it!!
And yet others will come to you as well meaning, caring, alternative health practitioners. They promise to ease your pain, but really they are promising to rob you blind!
Take for example the “Clear Passage” people – they are using half-assed Chi Nei Tsang and charging people $5,000 to travel to them for a week of treatments! The cost of travel is NOT included in their fee!
I got their brochure awhile back because they’d refused to list any prices on their website. Once I saw the pricing in the brochure, I saw red.
And now, the whole point of today’s rant – it had to have a prehistory to lead up to this, but this week’s “winner” for bringing out the rant is the Qigong/Chi Nei Tsang practitioner who got back to me the other day and sounded urgent for me to come back in for treatments again.
What I didn’t tell you was that she wanted to charge me three times what she was charging me previously. She says she’s changed her sales up and now the detox treatment has to come bundled with two Chi Nei Tsang touch treatments, for a total of $325.
I talked with my husband about it. We looked at my bank account and looked at our joint account (which is supposed to be for my schooling). We couldn’t find the extra money for the treatment. My husband said he didn’t feel comfortable ponying that amount of money to this lady, when he doesn’t believe her previous treatments have helped me. I argued the point, saying I hadn’t seen her often enough to know for sure, and with that, should I also stop seeing the acupuncturist, because I sure as shit haven’t experienced pain relief from that, yet. Or should I increase the visits to these people and see how it goes for a few months?
My husband remains doubtful that I will gain pain relief from these treatments. I called the Chi Nei Tsang lady back and left a message letting her know I could not do the package deal, sorry.
I told my husband however that I refuse to stop seeing the acupuncturist, and that she and I have an open dialogue and are trying to figure out the best continued treatment for me, AND she is keeping her pricing affordable to my situation.
The Chi Nei Tsang lady called me back and offered her condolences, and said that if I still wanted to come see her in the future, she could give a discount. She didn’t offer anything for the here and now. She didn’t offer to cut out the Chi Nei Tsang sessions and only give me the supplements for the detox diet. I began to suspect her so-called caring and sincerity.
So I decided to find a way around the Chi Nei Tsang lady’s road block. She’s previously given me the ingredients list of the detox diet, now all I have to do is hunt the ingredients down, right?
I found a few old bottles of supplemental pills that still have not reached their expiration date. Looks like I could buy some vegetarian pill capsules and fill them with clove for example, like what I’m seeing in the bottles.
I examined the bottles closely.
Well look at that! I thought I’d examined the bottles before and hadn’t seen a web address, but this time around, I found a web address! I think I’ll check it out!
And lo and behold, the entire detox ingredients list is to be found, supplemental pills and bulk tea treatments and all – FOR HALF THE PRICE I WAS BEING CHARGED – on a website called Self Health Resource Center (http://www.shrc.net/).
Again, ladies and gentlemen, my pet peeve. Here I am, trying to get honest advice and treatment for my debilitating, chronic pain, and instead of being told to check out a website called Self Health Resource Center, where I can buy some supplements, I am instead given the idea that she works with some supplier somewhere only for practitioners such as herself, and that I can’t get this on my own, and more to the point, she blatantly marks up her prices to make a profit off of MY suffering!!!
I AM NOT OKAY WITH THAT!
Now, here’s a thing…
That website is also known as “The Original Dr. Hulda Clark Products Manufacturer.”
Who the hell is Dr. Hulda Clark?
Apparently she was a quack and a charlatan!
You can read about her here, here, and here.
Why is my Chi Nei Tsang practitioner, who supposedly is schooled through the Chi Nei Tsang Institute (http://www.chineitsang.com/cnti/Welcome.html), buying products from another school of medicine, so to speak?
I looked up the person who founded and runs the Chi Nei Tsang Institute – his name is Gilles Marin. I have always taken issue with this Gilles guy, because in the detox diet instructions, there is a recipe for 7 Vegetable Soup, where it says, “This is an old family recipe that has been passed down to Gilles’ grandmother from her grandmother who was the witch-doctor of her native village from Southern Provence in France.”
Riiiiggghhhht. I wanna see a genealogical workup on this guy.
Instead, I will look him up on the Internet.
Gilles Marin has written a book called Healing From Within With Chi Nei Tsang.
This book cites “The Cure for All Diseases” by guess who?
I was also curious as to whether Gilles Marin shares my Chi Nei Tsang practitioner’s idea that I have manifested my own illness – that it’s all my fault that I have endometriosis and other autoimmune disease. I wanted to know if she learned this from him or if she thinks this independently of him.
According to an article on Open Exchange, Gilles Marin is quoted as saying, “The spirit revolts in an attempt to bring us to our senses, in a fit of rage or act of rebellion, sometimes without a cause or apparent rational meaning. This rebellion can manifest in our behavior but also as physical symptoms and illnesses. From this perspective most chronic illnesses are an attempt from the spiritual body to make us pay attention, heal, and change. These illnesses are healthy reactions to unhealthy situations. Without such reactions from our spirit, we fall off the way (Tao) that serves our life purpose. Enthusiasm disappears. When we live a dispassionate life, there is only senseless depression with its inner message saying that since we are not enjoying life, we don’t deserve to live!”
So let me get this straight. I began having chronic urinary tract infections from early childhood. I started my period late, at the age of 14, and from the very first year, I was in debilitating pain, often vomiting from the pain. But it is I who brought this upon myself? I caused endometriosis?
Gilles Marin also talks on the Daily Om about negative emotions creating disease. Again my argument stands – my illnesses came to me in utero, assholes.
So now here I sit, knowingly just having spent money last night on the Dr. Hulda Clark website to obtain the same supplements for far cheaper than my Chi Nei Tsang practitioner was charging me for them, and I have to wonder:
When I went on the detox diet in November, 2008 – did my 4cm ovarian cyst shrink back to 1.6cm within a month because I was taking those supplements, or because my body just naturally began reabsorbing the cyst?
I can’t really do a control test – I can go through another month of the supplement detox diet, and then ask for another ultrasound in August to see if my ovarian endometrioma has gotten any bigger, but the thing is, an endometrioma on the ovary is NOT a regular ovarian cyst. It’s a mass that doesn’t reabsorb.
But it can’t hurt to see if the growth is staved, right? My GYN and my primary care doctor both say there’s nothing I can do about the endometrioma but watch it to see if it gets any bigger.
It grew .5cm in a 36 day period. Gods knows how much bigger it’s grown since the MRI on May 27th.
Once it gets to 5cm, I need to go get a cancer test. Which will of course come out flagged, because I have endometriosis, which always sets off a flag on the CA 125 test.
My choices are:
- Sit back and wait (i.e. do nothing)
- Modify my diet again NOW
- Start the detox supplement diet in addition to modifying my diet.
I am going to choose #2 and #3.
And I’m also going to practice calming the hell down and forgiving all these damned charlatans out there for using me and abusing me.