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13

Aug

We Are Not Seekers

Posted by admin 

Graciously reprinted with permission:

We Are Not Seekers
Posted by: endochick, who has a blog called Endometriosis: the silent life sentence.
June 1, 2009

Dear Doctors, Nurses, Nurse Practitioners, Physician Assistants, and other Medical Personnel:

We are not seekers… or druggies… or addicts – we are in pain.

You cannot hear us because your ears are deaf to our cries; your eyes blinded to our tear-stained faces. Your hands feel our cyst-filled ovaries, yet they glide so smoothly over the knots of turmoil that seethe in our stomachs and keep us up all night. Your laparscope camera view witness to the implants, bleeding, oozing, growing – our bodies playing hostess to a disease that is internally draining the life from us. It sees the webs and bands of adhesion’s formed and wrapped like cellophane and Christmas wrapping on our uterus, our ovaries, our fallopian tubes, our pelvic cavities, our intestines, our bladders – binding everything and pulling them into a tight band until everything is forcing to snap from the tension.

We ask for relief – you give us “the pill,” “the shot,” “the ring.” Whatever the mask it’s wearing it’s hormones you bring. This plagues us with migraines, and moodiness, achy joints, weight gain, cravings. Slowly, we feel ourselves slipping; we are no longer ourselves. We’ve become bitchy blobs. Some of us are still in great pain; bleeding and writhing in monthly nauseating waves. It never ceases, even though we plead for it to as we cling to our bed sheets as we wait for the heating pad to heat up or the ibuprofen to work.

But when push comes to shove, and we just can’t take it any more, we slide back into your offices and beg for something to numb the hell. Just something, we ask, for those 2-7 days. Just something, we ask; just something for the pain. Yet, we keep getting turned away. Your ears remain deaf. Your eyes remain blind. Your fingers reach for your pads and write out that script for a lesser drug. You might say, “I would love to give you something stronger but I’m only an NP.” But we know this is a lie. If you wanted, you could get the doctor’s permission. You’ve done it before. You’ve…done…it…before…

So remember…Doctors…Nurses…Nurse Practitioners….Physician’s Assistants…and other Medical Personnel…

We are not seekers… or druggies… or addicts – we are in pain.

Doctors, you take an oath to do no harm – yet, when you send us away under-medicated and in pain you are doing harm. Please, stop under-medicating your chronically ill patients in fear that they are addicts. Instead, take the time and get to know your patients. By doing so you will know if they are addicts or truly in pain.

Chronic illness sucks – doesn’t matter what kind. If you’re in pain and not being properly treated, you’re life can be rough. But sometimes dealing with the doctors who treat you like an addict when all you’re trying to do is get someone to listen to your pain is down right frustrating. And that is so sad.

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Don't Have Endo? Please Read!

  • The Letter From Survivors

  • Public Service Announcement!

  • We Are Not Seekers

  • What I Should Have Said

  • "...but have you tried..."

  • Sick Humor: The top ten worst
    suggestions commonly given to
    someone with a chronic illness


  • Our Life In Comics

Important Pages

  • Research and Medical Journals

  • Myths about Endometriosis

  • YouTube Video Blogs

  • Applying For Disability

  • Be Aware!

  • Endo and Menopause

  • Is Endo A Cancer?

  • Job Discrimination

  • Fallen Endo Sisters

Mankoski Pain Scale

0 - Pain Free

1 - Very minor annoyance - occasional
minor twinges. No medication needed.

2 - Minor Annoyance - occasional
strong twinges.
No medication needed.

3 - Annoying enough to be distracting.
Mild painkillers take care of it.
(Aspirin, Ibuprofen.)

4 - Can be ignored if you are really
involved in your work, but still
distracting. Mild painkillers remove
pain for 3-4 hours.

5 - Can't be ignored for more than 30
minutes. Mild painkillers ameliorate
pain for 3-4 hours.

6 - Can't be ignored for any length of
time, but you can still go to work and
participate in social activities.
Stronger painkillers (Codeine,
narcotics) reduce pain for 3-4 hours.

7 - Makes it difficult to concentrate,
interferes with sleep. You can still
function with effort. Stronger
painkillers are only partially effective.

8 - Physical activity severely limited.
You can read and converse with effort.
Nausea and dizziness set in as factors
of pain.

9 - Unable to speak. Crying out or
moaning uncontrollably - near delirium.

10 - Unconscious. Pain makes you
pass out.

© Andrea Mankoski

Organisations

  • Endometriosis Association

  • Endometriosis Research Center

  • endometriosis.org

  • World Endometriosis Foundation

  • Center for Endometriosis Care

  • World Endometriosis Society

Symptom Tracking

  • CureTogether.com - Compare
    symptoms with people like you,
    Find treatments that work,
    Optimize your health

  • ReliefInSite.com - Real-time pain
    mapping, monitoring, analysis

  • MyMonthlyCycles.com - free
    personalized tools to track,
    monitor, and manage your
    monthly menstrual cycles!

Endo Products


  • HagRag.com - cloth
    menstrual pads

  • Lola's Loft - cloth
    menstrual pads

  • Naturally Hip - cloth
    menstrual pads

  • EndoFEMM - Microwavable
    corn-filled cloth heating pads
    (mention you saw them here
    and get 10% off your order!)

  • Bed desk - use for books,
    writing, laptop, eating while
    bedridden from the pain

Endo Blogs

  • Amanda’s Patch
  • Autoimmune Life
  • Barb’s Bumpy Ride
  • Brandzilla, living with endo & IC
  • Canadian Girl In Pain
  • Chronic Healing
  • Cure Endometriosis?
  • Dear Thyroid
  • Endo en Vogue
  • Endo Friendo
  • Endo Times
  • EndoJoanna
  • Endometriosis Interactive Support
  • Endometriosis Journey
  • Endometriosis, Among Other Things
  • Endometriosis: Facing The Battle Head On
  • Endometriosis: The Silent Life Sentence
  • Field Notes from an Evolutionary Psychologist
  • Foxy In The Waiting Room
  • Hope Garden
  • I Will Not Suffer In Silence - My continuing Endometriosis story
  • Jenny With Endo
  • Life With Endo & PCOS
  • light at the end of the tunnel
  • Lupron Journal
  • My Healing Journey
  • My Journey With Endometriosis
  • My Life With Endo & Infertility
  • Resilience
  • Sallie Speaks
  • SansUterus
  • Squidgeaboo’s Endo Blog
  • Stuff Sick People Have To Put Up With
  • Surviving Endo
  • That Girl With Endo
  • The Battle Continues…
  • The Ins and Outs of Endo
  • The Mud and The Lotus
  • Whispered Words …
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Medical Journals

  • Journal Of Endometriosis


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Recent Posts

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