Tired on so many levels

I got about 7 hours of sleep before having to wake for the day because the pain forced me out of bed.

I stood groggily in the bathroom, staring in the mirror, trying to figure out if I should take Tylenol 3 with Advil, or eat some more medicated butter with Advil. The pain rose to a 7 on the pain scale.

I remembered eating just a few slivers of the medicated butter on a gluten-free waffle last night. The effects took 20 minutes or longer to kick in, and then I was pain-free for about an hour to an hour and a half. Then the pain returned, but was not an alarming pain. I went to bed with heating pads. Within half an hour, I was awake again and severely stoned. What?!? How did that happen? I was dizzy and slightly nauseous due to being so stoned. Was it the fact that I’d been on half a Tylenol 3 before eating the medicated butter – did it prolong the high? It just seemed like a new wave of stoned was washing over me – after I had gone to bed. Kinda scary.
When my spouse crawled into bed around 3am, I woke suddenly and was dizzy and discombobulated. I cried out. I had no idea what was happening. I was on the verge of hallucinating.
My sleep remained broken and full of strange dreams all night.

This is why I stood in the bathroom this morning, contemplating which drug to medicate with. I know the Tylenol 3 like the back of my hand. The medicated butter is new and scary for me, especially since the dosing is completely up to me to figure out, and is not so cut and dry as pill splitting.


When the pain got to a 7 this morning, I also got the urge to defecate. Usually this is bad news – whenever there is pressure on the bowels or the bladder, the endometriosis pain becomes excruciating. While having a movement, I sometimes yell or cry out in pain, and sometimes I get quite nauseated from the pain, but once I’ve had the movement, the pain subsides, leaving me exhausted physically and emotionally. It does not matter if I have a soft stool, or diarrhea – if the bowels are agitated, it can get real bad for me, pain-wise. Of course, if I’m constipated, forget it, I’ll be on the verge of passing out from the pain.
Thankfully this morning the pain did not reach nauseating levels, and I was not constipated. Thankfully the pain abated immediately after the movement, and I’ve been about a 3 on the pain scale for the past hour.

That means I have delayed taking any medication, but the question still faces me – Tylenol 3 or medicated butter?

Today is Sunday. It is only my second day of full on menses and pain. I estimate I’ll be missing work tomorrow, based on years of experience as to how long my cycle lasts and how many days of bleeding and pain go with it.
That means I should not feel guilty over whatever medication I choose to take today, and if it leaves me too groggy to go to work in the morning, it’s okay, because I am taking care of myself today and in the here and now while the pain is present.
I spent too many years pushing myself to go to work despite still being in a lot of pain, or being exceedingly groggy from the pain and the medication to treat it. When my body tells me it is ready to return, and that could be tomorrow, then I will return. If it is not ready to return, then I will take the day off. No more of dad’s words in my head, telling me to “crawl in to work if you have to“. No more bullshit in my head from the Celestine Prophesy/The Secret/What The Bleep? cultists out there who say that I’ve manifested my own illness by way of pessimistic thinking or as they call it “Law of Attraction” (I’ve ranted about this in the past).

I’m tired.

I’m tired because of my broken sleep last night. I’m tired of proving myself to the entire world that I really am doing the best I can to treat the illness as it exists in my own meatsack. I’m tired of going through the pain every month, and the side effects of various treatments and medications. I’m tired of losing sunny days to the pain (this is Day 2 of not being able to go out into the warm sunshine and bicycle or go for a walk or run around town with my spouse in a care-free manner, enjoying the weekend).

I’m currently at a 3 on the pain scale, with intermittent ass-shooting pain, which takes me up to a 7 on the pain scale. Need more breakfast food. Will report back later.

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