Genetic Endometriosis Research Study

I just saw this today in one of the endometriosis forums I watch.

Juneau Biosciences, LLC is conducting a Genetic Endometriosis Research Study.

I am quoting directly from their website:

“The purpose of this research study is to investigate the genes responsible for predisposing women to endometriosis. By identifying these genetic variants, our team of health professionals and scientists plans to develop noninvasive diagnostics and earlier and more effective therapies for this often-debilitating condition.”

“The study Juneau Biosciences is undertaking is designed to identify the gene or genes which contribute to the development of endometriosis. Once the genes involved are discovered, we are hopeful that new options will be developed for women not only to treat but also to allow prevention of endometriosis.”

“Eligibility

Who is qualified to participate?
If your endometriosis has been diagnosed, confirmed, or treated by surgery we would like to talk to you about participating in our study. Even women who no longer experience symptoms due to menopause or a hysterectomy are qualified to participate, as long as they have been diagnosed sometime in the past.”

“Participation is as easy as 1, 2, 3!

1. Submit a DNA sample in the form of saliva – no blood draw is required!
2. Complete a questionnaire regarding family and health history
3. Allow us to review your medical records pertaining only to endometriosis

“If you qualify to participate in this study, you can expect the following:

• You will be contacted by a study coordinator and introduced to the organization conducting this research
• We will send you a packet with the questionnaire, medical record release, and saliva sample kit
• After completion, you will send these items back to our laboratory in the postage-paid envelope we’ve provided
• If you’d like, we will send you occasional information regarding the progress of our research”

They also have a F.A.Q. here.

Along with other people in forums and endo blogs, I do not see how Juneau Biosciences is getting its funding. Why wouldn’t they disclose that? That’s the only thing that kinda sticks out for me. But for now I’m hoping this is beneficial research.