Apr

Organisations and Support Networks

Posted by steph

There are several helpful organisations out there for information about endometriosis.

UPDATE IN PROCESS

The World

World Endometriosis Research Foundation (WERF) – Main website, Facebook, Twitter
World Endometriosis Society (WES) – Main website, Facebook, Twitter

Africa – North

Africa – East

Endosisters East Africa (Kenya, Rwanda, Ethiopia) – Main website, Facebook, Twitter, YouTube
Association Mon Endométriose Ma Souffrance – Île de la Réunion (MEMS) – Main website, Facebook

Africa – Southern

The Botswana Endometriosis Foundation – Facebook
Zimbabwe Endometriosis Support Network – Facebook

Africa – West

Endometriosis Foundation Ghana (EFG) – Main website, Facebook, Twitter

America – North & Central

Endometriosis Network Canada – Main website, Facebook, Instagram, Twitter
Endometriosis Summit – Main website, Blog, Facebook, Instagram, Youtube
Center for Endometriosis Care (CEC)
endometriosis.org (They also have a list of further organisations here).
Endometriosis Association (EA)
Endo Black
The Endo Coalition
Endometriosis Foundation of America (EFA)
EndoQueer
Endometriosis Research Center (ERC)
Asociación Costarricense Endometriosis (AENDOCR) [Costa Rica] – Main website, Facebook, Instagram

America – South

A Endometriose e Eu (Brazil) – Main website, Blog, Facebook

Asia

E for Endometriosis Main website, Facebook, Instagtram

Europe

Endomarch Cyprus – Let’s Talk About It – Facebook, Instagram
EndoTalks CZ – Main website, Facebook, Instagram, Youtube
Endometriózis Magyarország – Main website, Blog, Facebook, Instagram, Youtube
Italian Endometriosis Foundation – Main website, Facebook, Instagram, Youtube

Oceania

Endometriosis Australia – Main website, Blog, Support Groups, Facebook, Instagram, Twitter, Vimeo, Youtube
Endometriosis New Zealand – Main website, Facebook, Instagram, Twitter, Youtube

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Important Pages

Mankoski Pain Scale

0 - Pain Free

1 - Very minor annoyance - occasional
minor twinges. No medication needed.

2 - Minor Annoyance - occasional
strong twinges.
No medication needed.

3 - Annoying enough to be distracting.
Mild painkillers are effective.
(Aspirin, Ibuprofen.)

4 - Can be ignored if you are really
involved in your work, but still
distracting. Mild painkillers relieve
pain for 3-4 hours.

5 - Can't be ignored for more than 30
minutes. Mild painkillers reduce
pain for 3-4 hours.

6 - Can't be ignored for any length of
time, but you can still go to work and
participate in social activities.
Stronger painkillers (Codeine,
Vicodin) reduce pain for 3-4 hours.

7 - Makes it difficult to concentrate,
interferes with sleep. You can still
function with effort. Strongest
painkillers relieve pain (Oxycontin,
Morphine)

8 - Physical activity severely limited.
You can read and converse with effort.
Nausea and dizziness set in as factors
of pain. Stronger painkillers are
minimally effective. Strongest painkillers
reduce pain for 3-4 hours.

9 - Unable to speak. Crying out or
moaning uncontrollably - near delirium.
Strongest painkillers are only partially
effective.

10 - Unconscious. Pain makes you
pass out. Strongest painkillers are only
partially effective.

© Andrea Mankoski

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