Organisations

Search

Don't Have Endo? Please Read!

• The Letter From Survivors
  
  
• Public Service Announcement!
  
  
• We Are Not Seekers
  
  
• What I Should Have Said
  
  
• "...but have you tried..."
  
  
• Sick Humor: The top ten worst
  suggestions commonly given to
  someone with a chronic illness
  
  
• Our Life In Comics

Important Pages

• Endopaedia
  
  
• Research and Medical Journals
  
  
• Myths about Endometriosis
  
  
• YouTube Video Blogs of Yore
  
  
• Applying For Disability
  
  
• Be Aware!
  
  
• Endo and Menopause
  
  
• Is Endo A Cancer?
  
  
• Job Discrimination
  
  
• Fallen Endo Siblings

Mankoski Pain Scale

0 - Pain Free

1 - Very minor annoyance - occasional
minor twinges. No medication needed.

2 - Minor Annoyance - occasional
strong twinges.
No medication needed.

3 - Annoying enough to be distracting.
Mild painkillers take care of it.
(Aspirin, Ibuprofen.)

4 - Can be ignored if you are really
involved in your work, but still
distracting. Mild painkillers remove
pain for 3-4 hours.

5 - Can't be ignored for more than 30
minutes. Mild painkillers ameliorate
pain for 3-4 hours.

6 - Can't be ignored for any length of
time, but you can still go to work and
participate in social activities.
Stronger painkillers (Codeine,
narcotics) reduce pain for 3-4 hours.

7 - Makes it difficult to concentrate,
interferes with sleep. You can still
function with effort. Stronger
painkillers are only partially effective.

8 - Physical activity severely limited.
You can read and converse with effort.
Nausea and dizziness set in as factors
of pain.

9 - Unable to speak. Crying out or
moaning uncontrollably - near delirium.

10 - Unconscious. Pain makes you
pass out.

© Andrea Mankoski

Organisations

• Endo Black
  
  
• endoQueer
  
  
• The Endo Coalition
  
  
• endometriosis.org
  
  
• World Endometriosis Society
  
  
• Endometriosis UK
  
  
• World Endometriosis Foundation
  
  
• Center for Endometriosis Care
  
  
• Endometriosis Research Center
  
  
• Endometriosis Association
  
  
• Endometriosis Foundation of America
  
  
• Worldwide EndoMarch

Symptom Tracking

• CureTogether.com
  ^{- Compare symptoms with people like you,
  Find treatments that work, optimize your
  health}
  
  
• PatientsLikeMe.com
  ^{- Real-time pain mapping, monitoring,
  analysis. Community.}
  
  
• MyMonthlyCycles.com
  ^{- free personalized tools to track, monitor,
  and manage your mo nthly menstrual cycles!}

Endo Products

• Naturally Hip
  ^{- cloth menstrual pads}
  
  
• EndoFEMM
  ^{- Microwavable corn-filled cloth heating
  pads. (mention you saw them here and get
  10% off your order!)}
  
  
• Endo Awareness swag
  ^{- As found on Etsy}
  
  

Blogroll (archival from 2007)

• Antonia's Epic Endo Journey
• Canadian Girl In Pain
• Chances Our
• Chronic Healing
• Dear Thyroid
• Endo Empowered
• Endo Friendo
• Endo Times
• Endo Trauma
• Endo Writer
• Endometriosis: The Silent Life Sentence
• Field Notes from an Evolutionary Psychologist
• Foxy In The Waiting Room
• Get Well blog
• I Will Not Suffer In Silence
• Lupron Journal
• My Endometriosis Story – Lily Williams Art
• My Journey With Endometriosis
• My Life With Endo & Infertility
• Pop Goes The Feasible
• Reading List & Resources for chronic pain, including endometriosis
• Resilience
• Sallie Speaks
• SansUterus
• Surviving Endo
• The Ins and Outs of Endo
• Whispered Words …
• Yellow Paper Dress

Categories

• Administrative (12)
• Alternative medicine (4)
• Autoimmune (5)
• Biographies (13)
• Biology (15)
• Black Endo Health (7)
• Books (3)
• Cancer risk (19)
• Centers for Disease Control (1)
• Chronic Pain (7)
• Diet (9)
• Doctors (7)
• Endometriosis Awareness (153)
• Featured (46)
• Food and Drug Administration (6)
• Government-involvement (9)
• Heart risk (1)
• Hormone Replacement Therapy (HRT) (3)
• Hysterectomy (5)
• Infertility (1)
• Inspirational (3)
• Insurance industry (3)
• Malpractice (4)
• Medical industry (5)
• Menopause (1)
• News article (107)
• Outrageous (20)
• Pain management (3)
• Pharmaceuticals (13)
• Pseudoscience (1)
• Research (75)
• Suicide (2)
• Support and networking (8)
• Tips and advice (11)
• Trans Health (8)
• Uncategorized (10)

Archives

• March 2023 (5)
• March 2022 (9)
• April 2021 (1)
• March 2021 (15)
• November 2020 (1)
• March 2020 (2)
• January 2020 (2)
• March 2019 (7)
• March 2018 (8)
• March 2017 (12)
• April 2016 (1)
• March 2016 (8)
• February 2016 (1)
• August 2015 (1)
• March 2015 (17)
• December 2014 (1)
• July 2014 (1)
• April 2014 (2)
• March 2014 (3)
• May 2013 (1)
• March 2013 (31)
• July 2012 (1)
• April 2012 (2)
• March 2012 (9)
• February 2012 (5)
• January 2012 (2)
• December 2011 (1)
• November 2011 (1)
• August 2011 (1)
• July 2011 (1)
• March 2011 (3)
• January 2011 (5)
• December 2010 (3)
• November 2010 (1)
• October 2010 (1)
• September 2010 (2)
• August 2010 (2)
• July 2010 (2)
• May 2010 (1)
• April 2010 (8)
• March 2010 (4)
• February 2010 (10)
• January 2010 (2)
• December 2009 (1)
• November 2009 (4)
• October 2009 (2)
• September 2009 (3)
• August 2009 (4)
• June 2009 (2)
• April 2009 (2)
• March 2009 (38)
• February 2009 (9)
• January 2009 (15)
• December 2008 (12)
• November 2008 (8)
• January 2008 (1)

Syndication

• Add blog to any reader


• Comments RSS