Living With Endometriosis

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18

Apr

What Is Endometriosis?

Posted by steph 

Endometriosis is an autoimmune illness that one is born with. Doctors do not know what causes endometriosis – there may be several causes. So much misinformation and ignorance still exists about the origins of endo that many people spend years being dismissed, degraded, and mis-diagnosed by doctors before surgical diagnosis confirms endometriosis. People spend many more years being treated like guinea pigs because doctors cannot agree on effective medical and medicinal treatment of endometriosis.

The symptoms of endometriosis vary from person to person, but often include the following:

  • Chronic pelvic pain, often extending to the lower back
  • Heavy menstrual cycles
  • Mittelschmerz (mid-cycle pain and/or bleeding)
  • Pain during intercourse
  • Moderate to severe fatigue
  • Painful urination or bladder complications during menstruation
  • Painful bowel movements during menstruation
  • Rectal bleeding before and/or during menstruation
  • Diarrhea, constipation or nausea during menstruation
  • Frequent Urinary Tract Infections and/or yeast infections
  • Infertility
  • Low-grade fever
  • Migraine headaches
  • Nausea
  • Dizziness
  • Hypoglycemia (low blood sugar)-like symptoms
  • Joint pain
  • Feeling out of breath or easily winded

Stats are still sketchy as to how many people suffer with endometriosis.

  • “Endometriosis is a painful, chronic disease that affects at least 6.3 million women and girls in the U.S., 1 million in Canada, and millions more worldwide”. – Endometriosis Association
  • “Current estimates suggest that 6% to 10% of women of reproductive age have endometriosis, or approximately 5 million women in the United States”. – National Institutes of Health
  • “Endometriosis is a very common condition affecting up to 10 per cent of women between 16 and 50 years of age, often without producing any symptoms”. –NetDoctor
  • “Endometriosis is estimated to occur in roughly 6–10% of women. It is most common in those in their thirties and forties.” –WomensHealth.gov WHAT?!? NO! THIS IS MISINFORMATION!!!
    – Wikipedia, citing the womenshealth.gov website from 2014.
  • “Endometriosis is estimated to affect over one million women (estimates range from 3% to 18% of women) in the United States”. –Medicine Net

Treatment of endometriosis can include pain medication, surgery, hormonal treatment, and alternative medicine, but it must be noted that currently, the only definitive diagnosis of endometriosis is firstly made via laparoscopy. HOWEVER, most people with these symptoms already know they have endometriosis – you don’t need to wait for a definitive diagnosis to start asking your doctor for help TODAY!

Any good reproductive endocrinologist worth their salt will be able to help you until you have ‘the official’ diagnostic surgery. The diagnosis is merely to see how bad things are inside so you can continue to get the ongoing care you need. ❤


See also:

  • What is endometriosis?, from The Endometriosis Association
  • Here’s what we do know about endometriosis, from the National Institutes of Health
  • Understanding Endometriosis, from The Endometriosis Network Canada
  • What is endometriosis?, from Net Doctor
  • Wikipedia definition of endo
  • What is endometriosis?, from Medicine Net
  • Endometriosis F.A.Q., from Women Living Naturally
  • Myths About Endometriosis

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Mankoski Pain Scale

0 - Pain Free

1 - Very minor annoyance - occasional
minor twinges. No medication needed.

2 - Minor Annoyance - occasional
strong twinges.
No medication needed.

3 - Annoying enough to be distracting.
Mild painkillers take care of it.
(Aspirin, Ibuprofen.)

4 - Can be ignored if you are really
involved in your work, but still
distracting. Mild painkillers remove
pain for 3-4 hours.

5 - Can't be ignored for more than 30
minutes. Mild painkillers ameliorate
pain for 3-4 hours.

6 - Can't be ignored for any length of
time, but you can still go to work and
participate in social activities.
Stronger painkillers (Codeine,
narcotics) reduce pain for 3-4 hours.

7 - Makes it difficult to concentrate,
interferes with sleep. You can still
function with effort. Stronger
painkillers are only partially effective.

8 - Physical activity severely limited.
You can read and converse with effort.
Nausea and dizziness set in as factors
of pain.

9 - Unable to speak. Crying out or
moaning uncontrollably - near delirium.

10 - Unconscious. Pain makes you
pass out.

© Andrea Mankoski

Organisations

  • Endometriosis Association

  • Endometriosis Research Center

  • endometriosis.org

  • World Endometriosis Foundation

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Endo Products


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