Living With Endometriosis

  • Home
  • [About]
  • [What Is Endometriosis?]
  • [Support]
  • [Endo Organisations]
  • “…but have you tried…”
  • About Me
  • Alternative Medicine
  • Applying for Disability
  • Be Aware
  • Endometriosis and Menopause
  • Fallen Endo Siblings – A Memorial Page
  • Filing for Medicare health benefits
  • Filing for Social Security Disability Insurance (SSDI)
  • Hormonal Suppression
  • In The News – Pharmaceuticals Can Be Dangerous
  • Is Endometriosis A Cancer?
  • Job Discrimination
  • March is National Endometriosis Awareness Month
  • Myths About Endometriosis
  • Old Wives’ Tales
  • Online Support For Endometriosis
  • Organisations
  • Our Life In Comics
  • Pain Medication
  • Pharmaceutically-run Marketing Websites
  • Public Service Announcement
  • Research and Medical Journals
  • Surgery
  • We Are Not Seekers
  • What I Should Have Said
  • What Is Endometriosis?
  • YouTube – Endometriosis Video Blogs of Yore

26

Mar

France formally recognises endometriosis as ‘long-term condition’

Posted by admin 

France formally recognises endometriosis as ‘long-term condition’
The bill was passed unanimously through parliament. It means that all costs of care and treatment for the painful condition will now be covered by the state
14 January 2022
By Hannah Thompson

Endometriosis, a painful and debilitating condition that affects 1 in 10 women in France, has been formally recognised as a ‘long-term condition’ by the French parliament.

A “long-term condition” (affection longue durée (ALD)) in France means that care and treatment for the illness is completely covered by l’Assurance maladie.

The bill was put forward by political party (far-left) La France Insoumise, and l’Assemblée Nationale voted it through unanimously yesterday (January 13), with 111 votes for, and zero against.

MP for Seine-Saint-Denis Clémentine Autain, who presented the bill and wanted to have the definition “set in stone”, said the vote was “a giant step forward for millions of women”.

She said: “We can create a raft of rights for women who suffer. [This will especially help] poorly-paid women, those in precarious conditions, and the poorest [for whom the illness] is even more difficult to live with.”

Endometriosis is a disorder where tissue that usually lines the inside of the uterus grows outside the uterus, usually in the ovaries, fallopian tubes and pelvis. It can cause pain, bleeding, irritation, scar tissue, and even fibrous adhesions that can cause organs to stick together.

It can cause painful periods, pain during sex, painful bowel movements, excessive bleeding, fatigue, digestive issues, nausea, and infertility.

It can be difficult to diagnose and it still takes an average of seven years before women are diagnosed correctly.

The ALD decision comes two days after President Emmanuel Macron announced the launching of a national strategy to combat the illness.

He stated: “It’s not only a ‘women’s problem’. It’s society’s problem.”

The national plan will aim to boost understanding and awareness of the issue, as well as improve diagnosis rates and treatment plans.

Published in Endometriosis Awareness, News article

Related Articles

  • Worldwide Endo March (March 25th, 2023)
  • The Endometriosis Summit (March 25th, 2023)
  • Corinne Foxx details experience with endometriosis, producing film about the condition (March 19th, 2023)
  • Bindi Irwin is shining a light on this painful, underdiagnosed condition (March 19th, 2023)
  • Trans, gender-diverse people with endometriosis fight ‘double battle’ against pain and lack of recognition (March 31st, 2022)

No user responded in this post

Subscribe to this post comment rss or trackback url

Search

Don't Have Endo? Please Read!

  • The Letter From Survivors

  • Public Service Announcement!

  • We Are Not Seekers

  • What I Should Have Said

  • "...but have you tried..."

  • Sick Humor: The top ten worst
    suggestions commonly given to
    someone with a chronic illness


  • Our Life In Comics

Important Pages

  • Endopaedia

  • Research and Medical Journals

  • Myths about Endometriosis

  • YouTube Video Blogs of Yore

  • Applying For Disability

  • Be Aware!

  • Endo and Menopause

  • Is Endo A Cancer?

  • Job Discrimination

  • Fallen Endo Siblings

Mankoski Pain Scale

0 - Pain Free

1 - Very minor annoyance - occasional
minor twinges. No medication needed.

2 - Minor Annoyance - occasional
strong twinges.
No medication needed.

3 - Annoying enough to be distracting.
Mild painkillers take care of it.
(Aspirin, Ibuprofen.)

4 - Can be ignored if you are really
involved in your work, but still
distracting. Mild painkillers remove
pain for 3-4 hours.

5 - Can't be ignored for more than 30
minutes. Mild painkillers ameliorate
pain for 3-4 hours.

6 - Can't be ignored for any length of
time, but you can still go to work and
participate in social activities.
Stronger painkillers (Codeine,
narcotics) reduce pain for 3-4 hours.

7 - Makes it difficult to concentrate,
interferes with sleep. You can still
function with effort. Stronger
painkillers are only partially effective.

8 - Physical activity severely limited.
You can read and converse with effort.
Nausea and dizziness set in as factors
of pain.

9 - Unable to speak. Crying out or
moaning uncontrollably - near delirium.

10 - Unconscious. Pain makes you
pass out.

© Andrea Mankoski

Organisations

  • EndoBlack

  • EndoQueer

  • The Endo Coalition

  • endometriosis.org

  • World Endometriosis Society

  • Endometriosis UK

  • World Endometriosis Foundation

  • Center for Endometriosis Care

  • Endometriosis Research Center

  • Endometriosis Association

  • Endometriosis Foundation of America

  • Worldwide EndoMarch

Symptom Tracking

  • CureTogether.com
    - Compare symptoms with people like you,
    Find treatments that work, optimize your
    health


  • PatientsLikeMe.com
    - Real-time pain mapping, monitoring,
    analysis. Community.


  • MyMonthlyCycles.com
    - free personalized tools to track, monitor,
    and manage your mo nthly menstrual cycles!

Endo Products


  • Naturally Hip
    - cloth menstrual pads

  • EndoFEMM
    - Microwavable corn-filled cloth heating
    pads. (mention you saw them here and get
    10% off your order!)


  • Endo Awareness swag
    - As found on Etsy

Blogroll (archival from 2007)

  • Antonia's Epic Endo Journey
  • Canadian Girl In Pain
  • Chances Our
  • Chronic Healing
  • Dear Thyroid
  • Endo Empowered
  • Endo Friendo
  • Endo Times
  • Endo Trauma
  • Endo Writer
  • Endometriosis: The Silent Life Sentence
  • Field Notes from an Evolutionary Psychologist
  • Foxy In The Waiting Room
  • Get Well blog
  • I Will Not Suffer In Silence
  • Lupron Journal
  • My Endometriosis Story – Lily Williams Art
  • My Journey With Endometriosis
  • My Life With Endo & Infertility
  • Pop Goes The Feasible
  • Reading List & Resources for chronic pain, including endometriosis
  • Resilience
  • Sallie Speaks
  • SansUterus
  • Surviving Endo
  • The Ins and Outs of Endo
  • Whispered Words …
  • Yellow Paper Dress

Categories

  • Administrative (12)
  • Alternative medicine (4)
  • Autoimmune (5)
  • Biographies (13)
  • Biology (15)
  • Black Endo Health (6)
  • Books (3)
  • Cancer risk (19)
  • Centers for Disease Control (1)
  • Chronic Pain (7)
  • Diet (9)
  • Doctors (7)
  • Endometriosis Awareness (152)
  • Featured (45)
  • Food and Drug Administration (6)
  • Government-involvement (9)
  • Heart risk (1)
  • Hormone Replacement Therapy (HRT) (3)
  • Hysterectomy (5)
  • Infertility (1)
  • Inspirational (3)
  • Insurance industry (3)
  • Malpractice (4)
  • Medical industry (5)
  • Menopause (1)
  • News article (107)
  • Outrageous (20)
  • Pain management (3)
  • Pharmaceuticals (13)
  • Pseudoscience (1)
  • Research (75)
  • Suicide (2)
  • Support and networking (8)
  • Tips and advice (11)
  • Trans Health (8)
  • Uncategorized (10)
March 2022
S M T W T F S
 12345
6789101112
13141516171819
20212223242526
2728293031  
« Apr   Mar »

Archives

  • March 2023 (4)
  • March 2022 (9)
  • April 2021 (1)
  • March 2021 (15)
  • November 2020 (1)
  • March 2020 (2)
  • January 2020 (2)
  • March 2019 (7)
  • March 2018 (8)
  • March 2017 (12)
  • April 2016 (1)
  • March 2016 (8)
  • February 2016 (1)
  • August 2015 (1)
  • March 2015 (17)
  • December 2014 (1)
  • July 2014 (1)
  • April 2014 (2)
  • March 2014 (3)
  • May 2013 (1)
  • March 2013 (31)
  • July 2012 (1)
  • April 2012 (2)
  • March 2012 (9)
  • February 2012 (5)
  • January 2012 (2)
  • December 2011 (1)
  • November 2011 (1)
  • August 2011 (1)
  • July 2011 (1)
  • March 2011 (3)
  • January 2011 (5)
  • December 2010 (3)
  • November 2010 (1)
  • October 2010 (1)
  • September 2010 (2)
  • August 2010 (2)
  • July 2010 (2)
  • May 2010 (1)
  • April 2010 (8)
  • March 2010 (4)
  • February 2010 (10)
  • January 2010 (2)
  • December 2009 (1)
  • November 2009 (4)
  • October 2009 (2)
  • September 2009 (3)
  • August 2009 (4)
  • June 2009 (2)
  • April 2009 (2)
  • March 2009 (38)
  • February 2009 (9)
  • January 2009 (15)
  • December 2008 (12)
  • November 2008 (8)
  • January 2008 (1)

Syndication

  • Add blog to any reader

  • Comments RSS

Recent Post

  • Worldwide Endo March
  • The Endometriosis Summit
  • Corinne Foxx details experience with endometriosis, producing film about the condition
  • Bindi Irwin is shining a light on this painful, underdiagnosed condition
  • Trans, gender-diverse people with endometriosis fight ‘double battle’ against pain and lack of recognition
  • Transgender People with Endometriosis Often Suffer in Silence
  • Font issues with the website
  • France formally recognises endometriosis as ‘long-term condition’
  • Worldwide Endometriosis March
  • 10 Research-Backed Truths About Endometriosis

Recent Comments

  • admin in Honouring Henrietta Lacks
  • Kathy in A Breakthrough In A Disease That No One Likes To T…
  • Jenn in Unbelievable doctors in the 21st century
  • admin in Peggy Santa Maria - a saint to endo sisters!
  • That Girl with Endo in Peggy Santa Maria - a saint to endo sisters!
  • I Will Not Suffer In Silence »… in Peggy Santa Maria - a saint to endo sisters!
  • That Girl with Endo in Peggy Santa Maria - a saint to endo sisters!
  • steph in Peggy Santa Maria - a saint to endo sisters!
  • JennM in Peggy Santa Maria - a saint to endo sisters!
  • I Will Not Suffer In Silence »… in Genetic variants on chromosome 1 and 7 more likely…
© 2008 Living With Endometriosis is proudly powered by WordPress
Designed by Roam2Rome