Before I was diagnosed with endometriosis, I did not seek out much information online. I read the Endometriosis Association’s books, and other books I found on endo, but without the ‘official’ surgical diagnosis, I felt like I had no business popping up in forums and support groups to discuss my pain.
I want to tell you to PLEASE, DO NOT MAKE THE SAME MISTAKE I DID!
If you suspect you have endometriosis, you have EVERY RIGHT to be present online in the forums and support groups! Educate yourself as much as you can about endometriosis. Start trying out dietary and safe alternative medicine remedies NOW rather than endure more pain out of not knowing what to do.
While laparoscopy is currently the ONLY way to officially diagnose a woman with endometriosis, it does you no harm to get educated now to know what to expect – what to brace for – and how to cope with this horrible illness.
Below you will find a wealth of support available to you.
- Travels With Pain
- Patients Without Borders
- Myths About Endo
- But You Don’t Look Sick?
- DailyStrength Endo forum
- OBGYN.net Endo Forum
- Topix.net Endo Forum
- CureZone Endo Forum
- MedHelp Endo Forum
- WebMD Endo Forum
- LiveJournal Endo Forum
- Greater Boston Area Endo Forum
- MDJunction Endo Forum (“the “MD” in MDJunction stands for Making a Difference”)
- The Invisible Disabilities Advocate
- The American Association of People with Disabilities (AAPD)
- My Endo Sisters on Facebook
- Endometriosis Sisters on Facebook
- Living With Endo on Facebook (not related to this blog)
- Chronic Pain Forum on Facebook
See also: Local and face-to-face support groups for women who suffer with endometriosis.
Personal Stories From Women Who Suffer With Endometriosis
- Stories of women from around the world who have Endometriosis
- Stories from endomagazine.com
- Jennifer’s Battle with Endometriosis & Adenomyosis
- Stories from womenshealthchannel.com
- Athina Marie’s story
