Trans, gender-diverse people with endometriosis fight ‘double battle’ against pain and lack of recognition Menstrual-related condition affects 1 in 10 people with a uterus — but is usually seen as affecting women only Julie Landry * CBC News Posted: Mar 31, 2021 The day Sally Zori went to the hospital in Vancouver for their hysterectomy, […]
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31
Mar
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31
Mar
Transgender People with Endometriosis Often Suffer in Silence
Posted by admin Published in Endometriosis Awareness, Trans HealthTransgender People with Endometriosis Often Suffer in Silence By Laken Brooks October 14, 2021 Before reading this article, you may consider referring to these vocabulary terms: Cisgender: The state of identifying your gender with the sex you were assigned at birth Transgender: The state of not identifying your gender with the sex you were assigned […]
31
Mar
Hey all, just wanted to let you know that I have discovered an issue with font rendering on this website. I’m correcting blog entries as I discover them. I’m going to have to go back to pasting articles into a different word processor and cleaning them up there before pasting into Word Press here. As […]
26
Mar
France formally recognises endometriosis as ‘long-term condition’
Posted by admin Published in Endometriosis Awareness, News articleFrance formally recognises endometriosis as ‘long-term condition’ The bill was passed unanimously through parliament. It means that all costs of care and treatment for the painful condition will now be covered by the state 14 January 2022 By Hannah Thompson Endometriosis, a painful and debilitating condition that affects 1 in 10 women in France, has […]
26
Mar
The Worldwide Endometriosis March is LIVE now at:
13
Mar
10 Research-Backed Truths About Endometriosis
Posted by admin Published in Black Endo Health, Endometriosis Awareness, Featured, News article, Research, Trans Health10 Research-Backed Truths About EndometriosisWhat Endometriosis Patients Want Healthcare Professionals to KnowKristina Kasparian, PhDMarch 13, 2022 If you read that title again, it may seem strange to you. Patients wanting physicians to know more about a medical condition? Isn’t that a little backward? Although this debilitating health condition afflicts nearly 200 million individuals globally,1,2 endometriosis […]
9
Mar
Summary: “It’s a condition that the main symptom is pain and pain, as we know, it can often get dismissed in women and gender diverse people” “Despite its prevalence, experts say it can take anywhere from five to 10 years to get a diagnosis and receive treatment — which can range from hormone treatment to […]
6
Mar
Endometriosis pain and epithelial neutrophil activating peptide-78 levels
Posted by admin Published in ResearchEndometriosis pain and epithelial neutrophil activating peptide-78 levels Published: 25 February 2022Barbara Gardella, Mattia Dominoni, Andrea Gritti, Anna Arrigo, Silvia Antonucci, Giulia Vittoria Carletti, Valentina Musacchi & Giampiero Pietrocola Abstract Endometriosis is a chronic gynecological disorder involved in the pathogenesis of chronic pelvic pain, based on a probable up regulation of the inflammatory system. The objective of the study is to investigate the peritoneal […]
2
Mar
I first heard about Henrietta Lacks through a friend three years ago when she shared a news article about Johns Hopkins naming a new research building after her. In that article, I learned that “Henrietta Lacks was a young mother of five from eastern Baltimore County who, despite radiation treatment at the Johns Hopkins Hospital, died in […]
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Don't Have Endo? Please Read!
Important Pages
Mankoski Pain Scale
0 - Pain Free
1 - Very minor annoyance -
occasional
minor twinges.
No medication needed.
2 - Minor Annoyance -
occasional
strong twinges.
No medication needed.
3 - Annoying enough to be distracting.
Mild painkillers are effective.
(Aspirin, Ibuprofen.)
4 - Can be ignored if you are really
involved in your work, but still
distracting. Mild painkillers relieve
pain for 3-4 hours.
5 - Can't be ignored for more than 30
minutes. Mild painkillers reduce
pain for 3-4 hours.
6 - Can't be ignored for any length of
time, but you can still go to work and
participate in social activities.
Stronger painkillers (Codeine,
Vicodin) reduce pain for 3-4 hours.
7 - Makes it difficult to concentrate,
interferes with sleep. You can still
function with effort. Strongest
painkillers relieve pain (Oxycontin,
Morphine)
8 - Physical activity severely limited.
You can read and converse with effort.
Nausea and dizziness set in as factors
of pain. Stronger painkillers are
minimally effective. Strongest painkillers
reduce pain for 3-4 hours.
9 - Unable to speak. Crying out or
moaning uncontrollably - near delirium.
Strongest painkillers are only partially
effective.
10 - Unconscious. Pain makes you
pass out. Strongest painkillers are only
partially effective.
© Andrea Mankoski
Organisations
- Endo Black
- endoQueer
- The Endo Coalition
- endometriosis.org
- World Endometriosis Society
- Endometriosis UK
- World Endometriosis Foundation
- Center for Endometriosis Care
- Endometriosis Research Center
- Endometriosis Association
- Endometriosis Foundation of America
- Worldwide EndoMarch
- Worldwide Organisations and Support Networks (ongoing update)
Endo Products
- Naturally Hip
- cloth menstrual pads
- Pelvic Pain Solutions
- Microwavable corn-filled cloth
heating pads.
- Endo Awareness swag
- As found on Etsy
Archival Blogroll
(Blogs I connected with from the early days)- Antonia's Epic Endo Journey
- Canadian Girl In Pain
- Chances Our
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- Dear Thyroid
- Endo Empowered
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- Endo Times
- Endo Trauma
- Endo Writer
- Endometriosis: The Silent Life Sentence
- Field Notes from an Evolutionary Psychologist
- Foxy In The Waiting Room
- Get Well blog
- I Will Not Suffer In Silence
- Lupron Journal
- My Endometriosis Story – Lily Williams Art
- My Journey With Endometriosis
- My Life With Endo & Infertility
- Pop Goes The Feasible
- Reading List & Resources for chronic pain, including endometriosis
- Resilience
- Sallie Speaks
- SansUterus
- Surviving Endo
- The Ins and Outs of Endo
- Whispered Words …
- Yellow Paper Dress
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Recent Post
- Trans Endo Siblings – I see you.
- Are redheads more prone to Endometriosis?
- Did you know? Autoimmune Diseases Tend To Cluster
- Finding Others Like Us On The Web
- Research Studies of Endometriosis and the COVID-19 Pandemic
- Endometriosis In Transgender Men Is Still Poorly Understood
- Stats on Endometriosis
- Worldwide Virtual Endometriosis Conference
- Did you know? Racism led to the belief that Endometriosis only develops in white career women who delay childbirth.
- The Mankoski Pain Scale
Recent Comments
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- I Will Not Suffer In Silence »… in Peggy Santa Maria - a saint to endo sisters!
- That Girl with Endo in Peggy Santa Maria - a saint to endo sisters!
- steph in Peggy Santa Maria - a saint to endo sisters!
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