Research Studies of Endometriosis and the COVID-19 Pandemic

Does endometriosis increase susceptibility of COVID-19 Infections? – March, 2021
https://link.springer.com/article/10.1186/s12905-021-01270-z

A study of 1,027 people in Tehran, Iran from May to July 2020 found that people with endometriosis who got sick with COVID-19 “had a lower frequency of asymptomatic and febrile infection, but higher frequency of other symptoms, including gastrointestinal, dermatologic, hematologic, and neuronal disorders.”

COVID-19 pandemic and the consequential effect on patients with endometriosis – March, 2022
https://academic.oup.com/hropen/article/2022/2/hoac013/6550509

A study of 2,964 people from 59 countries between November 2020 and January 2021 found “a clear correlation between deterioration of the reported physical and mental state and impaired medical care for patients suffering from endometriosis during the COVID-19 pandemic.”

COVID-19 susceptibility in endometriosis patients – July, 2022
https://onlinelibrary.wiley.com/doi/full/10.1111/aji.13602

A study of 401 people in Milan, Italy from March 2020 to April 2021 showed that “patients with endometriosis have an increased risk for SARS-CoV-2-induced infection.”

Endometriosis and COVID-19: A Systematic Review and Meta-Analysis – October, 2022
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9657778/

A meta-analysis of studies totaling 17,779 patients between January 2020 and August 2022 found “that 7.5% of endometriosis patients were infected with SARS-CoV-2, and that endometriosis patients had an approximately 50% increased risk of acquiring COVID-19. When compared to the general population, the prevalence of COVID-19 in endometriosis patients seems to be higher.”

Association of laparoscopically-confirmed endometriosis with long COVID-19 – March, 2023
https://www.ajog.org/article/S0002-9378(23)00177-1/fulltext

A study of 46,579 people (95.4% non-Hispanic White) nurses in the United States from April 2020 to November 2022 showed that “Women with a history of laparoscopically-confirmed endometriosis had a 22% greater risk of developing long COVID-19 compared with those who had never been diagnosed with endometriosis.”

Below is the only article on the web that I could find right now which talks about those with endo who fear they are at higher risk for COVID-19, so I wanted to share.

Coronavirus (COVID-19) and Endometriosis

Tuesday, March 24, 2020

General advice

The situation with coronavirus (COVID-19) is escalating and changing on a daily basis.  It is a worrying time and a cause of anxiety and concern.  However, it is not the case that those with endometriosis are considered at increased risk. If you have endometriosis, similar to the general population, your best defence against the virus is minimising social contact and regular hand washing.

Thoracic endometriosis

Endometriosis within the chest cavity (in the lungs or on the diaphragm) is referred to as “thoracic endometriosis” and is estimated to be found in up to 10% of those with endometriosis. As COVID-19 is a respiratory tract infection, those that have pre-existing respiratory (breathing) problems are more at risk, and so it may be that if you have thoracic endometriosis you could be more at risk.  If you have thoracic endometriosis, your best defence against the virus is minimising social contact, regular hand washing, and self-isolating if necessary. If you’re concerned about specific treatments or symptoms, speak to your GP, or if you are under the care of a hospital, get in touch with the team there.  

Implications for your endometriosis care

The COVID-19 pandemic will add significant extra workload on the NHS. If you are currently receiving treatment or waiting for an appointment for your endometriosis, you are likely to experience changes, with delays or cancellations to your appointments or surgery. Hospital and GPs will be looking to move to remote consultations, such as by telephone. The vast majority of endometriosis surgery will be classified by the NHS as non-urgent “elective” surgery, and this means that those waiting for endometriosis surgery in the next few months will most likely have their surgery dates cancelled and re-issued in due course, and if you do not have a date for surgery, the waiting times for surgery are likely to increase.

We understand it may be very difficult if you have planned surgery or routine appointments cancelled during this unprecedented time for the NHS, but would like to reassure you that after the acute period of this pandemic is over, we will be working with the RCOG and others to ensure the endometriosis service is resumed and your care can continue/your appointments can be rescheduled. If you are finding your symptoms unmanageable during this time, contact NHS 111 or your GP.

For general information about COVID 19, please refer to the Government and NHS websites:

• UK Government guidance including on symptoms and staying at home with possible COVID-19 infection (link: https://www.gov.uk/government/publications/covid-19-stay-at-home-guidance/stay-at-home-guidance-for-households-with-possible-coronavirus-covid-19-infection )
• UK Government’s response to Coronavirus (COVID19) (link – https://www.gov.uk/government/topical-events/coronavirus-covid-19-uk-government-response )
• Advice from the NHS (link – https://www.nhs.uk/conditions/coronavirus-covid-19/ )
• Public Health England is producing daily updates on COVID-19 infections in the UK.

For questions about coronavirus, see nhs.uk/conditions/coronavirus-covid-19 or use the online NHS 111 service to check your symptoms 111.nhs.uk/covid-19. If you can’t access the online service, feel you cannot cope with your symptoms or they get worse, call NHS 111.

Coronavirus and your mental wellbeing

The Charity MIND have produced information about things that may help your mental wellbeing in these challenging times. Please see MIND (https://www.mind.org.uk/information-support/coronavirus-and-your-wellbeing/) for helpful resources.