Living With Endometriosis

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24

Nov

IGF-binding protein 7 levels elevated in those with Endometriosis

Posted by steph  Published in Biology, News article, Research

Circulating IGF-binding protein 7 (IGFBP7) levels are elevated in patients with endometriosis or undergoing diabetic hemodialysis Published on: 2008-11-19 Insulin-like growth factor-binding protein-7 (IGFBP7) is a secretory protein with a molecular mass of approximately 30 kDa. It is abundantly expressed in the uterine endometrium during the secretory phase of the menstrual cycle. Decreased IGFBP7 expression […]

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23

Nov

Eating tomatoes may help treat endometriosis

Posted by steph  Published in Diet, News article

Eating tomatoes may help treat endometriosis November 12, 2008 Mark Henderson, Science Editor, in San Francisco An antioxidant chemical found in tomatoes could be used to treat common causes of abdominal pain such as internal scarring after surgery and endometriosis, new research has suggested. Lycopene, the bright red pigment that gives tomatoes their characteristic colour, […]

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23

Nov

Alternative Therapy for Adhesion and Endometriosis Pain

Posted by steph  Published in Alternative medicine, News article

Alternative Therapy for Adhesion and Endometriosis Pain Examined in New Book ‘Miracle Moms, Better Sex, Less Pain’ In an upcoming book, “Miracle Moms, Better Sex, Less Pain,” researchers examine a non-surgical therapy to treat adhesion and endometriosis pain. Gainesville, FL (PRWEB) November 19, 2008 — Endometriosis is a painful and debilitating condition for millions of […]

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10

Nov

Endometriosis Patients Demand Awareness

Posted by steph  Published in News article

Endometriosis Patients Demand Awareness, Research, and Better Treatments: Sufferers Share What Works Written by Editor Choice Thursday, 06 November 2008 Often misdiagnosed and left to temporary treatment options, Endometriosis patients are now feeling more empowered than ever to spread awareness for the under-researched condition. Dancing with the Stars performers Julianne Hough and Lacey Schwimmer made […]

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5

Nov

Confluent SprayGel used in Endometriosis surgery causes excruciating internal scarring

Posted by steph  Published in Malpractice, Medical industry, News article, Pharmaceuticals

Scarring caused by surgical gel spray Women are being hurt by a surgical treatment LANE NICHOLS – The Dominion Post | Monday, 11 February 2008 A surgical gel – containing a drug untested on humans – has caused excruciating internal scarring in dozens of women that could lead to infertility, claims a leading gynaecologist. Many […]

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5

Nov

Telomerase enzyme a culprit in Endometriosis pain

Posted by steph  Published in Biology, News article, Research

Breakthrough for endometriosis sufferers as discovery offers hope for treatment and cure By Jenny Hope Last updated at 2:54 AM on 06th August 2008 A painful womb condition that affects around two million British women may be triggered by an out-of-control enzyme, scientists claim. They say the information could be used to diagnose and treat […]

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5

Nov

Diet Linked to Endometriosis

Posted by steph  Published in Diet, News article, Research

Diet Linked to Endometriosis (to view the article directly, paste the url to a google search window, then click through to the story. Otherwise, if you go to the url directly, they’ll try to make you sign in as a registered user) News Author: Laurie Barclay, MD CME Author: Désirée Lie, MD, MSEd July 15, […]

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5

Nov

Endometriosis news updates

Posted by steph  Published in Administrative

Hello friends. I am writing to you from bed on my laptop. I’ve been bedridden on and off for the past five days, and am currently drugged silly on Tylenol 3 for the pain. For many months now, this website has merely been a point of static information without any real updates. I am changing […]

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Don't Have Endo? Please Read!

  • The Letter From Survivors

  • Public Service Announcement!

  • We Are Not Seekers

  • What I Should Have Said

  • "...but have you tried..."

  • Sick Humor: The top ten worst
    suggestions commonly given to
    someone with a chronic illness


  • Our Life In Comics

Important Pages

  • Endopaedia

  • Research and Medical Journals

  • Myths about Endometriosis

  • YouTube Video Blogs of Yore

  • Applying For Disability

  • Be Aware!

  • Endo and Menopause

  • Is Endo A Cancer?

  • Job Discrimination

  • Fallen Endo Siblings

Mankoski Pain Scale

0 - Pain Free

1 - Very minor annoyance - occasional
minor twinges. No medication needed.

2 - Minor Annoyance - occasional
strong twinges.
No medication needed.

3 - Annoying enough to be distracting.
Mild painkillers take care of it.
(Aspirin, Ibuprofen.)

4 - Can be ignored if you are really
involved in your work, but still
distracting. Mild painkillers remove
pain for 3-4 hours.

5 - Can't be ignored for more than 30
minutes. Mild painkillers ameliorate
pain for 3-4 hours.

6 - Can't be ignored for any length of
time, but you can still go to work and
participate in social activities.
Stronger painkillers (Codeine,
narcotics) reduce pain for 3-4 hours.

7 - Makes it difficult to concentrate,
interferes with sleep. You can still
function with effort. Stronger
painkillers are only partially effective.

8 - Physical activity severely limited.
You can read and converse with effort.
Nausea and dizziness set in as factors
of pain.

9 - Unable to speak. Crying out or
moaning uncontrollably - near delirium.

10 - Unconscious. Pain makes you
pass out.

© Andrea Mankoski

Organisations

  • EndoBlack

  • EndoQueer

  • The Endo Coalition

  • endometriosis.org

  • World Endometriosis Society

  • Endometriosis UK

  • World Endometriosis Foundation

  • Center for Endometriosis Care

  • Endometriosis Research Center

  • Endometriosis Association

  • Endometriosis Foundation of America

  • Worldwide EndoMarch

Symptom Tracking

  • CureTogether.com
    - Compare symptoms with people like you,
    Find treatments that work, optimize your
    health


  • PatientsLikeMe.com
    - Real-time pain mapping, monitoring,
    analysis. Community.


  • MyMonthlyCycles.com
    - free personalized tools to track, monitor,
    and manage your mo nthly menstrual cycles!

Endo Products


  • Naturally Hip
    - cloth menstrual pads

  • EndoFEMM
    - Microwavable corn-filled cloth heating
    pads. (mention you saw them here and get
    10% off your order!)


  • Endo Awareness swag
    - As found on Etsy

Blogroll (archival from 2007)

  • Antonia's Epic Endo Journey
  • Canadian Girl In Pain
  • Chances Our
  • Chronic Healing
  • Dear Thyroid
  • Endo Empowered
  • Endo Friendo
  • Endo Times
  • Endo Trauma
  • Endo Writer
  • Endometriosis: The Silent Life Sentence
  • Field Notes from an Evolutionary Psychologist
  • Foxy In The Waiting Room
  • Get Well blog
  • I Will Not Suffer In Silence
  • Lupron Journal
  • My Endometriosis Story – Lily Williams Art
  • My Journey With Endometriosis
  • My Life With Endo & Infertility
  • Pop Goes The Feasible
  • Reading List & Resources for chronic pain, including endometriosis
  • Resilience
  • Sallie Speaks
  • SansUterus
  • Surviving Endo
  • The Ins and Outs of Endo
  • Whispered Words …
  • Yellow Paper Dress

Categories

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  • Endometriosis Awareness (152)
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  • Food and Drug Administration (6)
  • Government-involvement (9)
  • Heart risk (1)
  • Hormone Replacement Therapy (HRT) (3)
  • Hysterectomy (5)
  • Infertility (1)
  • Inspirational (3)
  • Insurance industry (3)
  • Malpractice (4)
  • Medical industry (5)
  • Menopause (1)
  • News article (107)
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  • Pain management (3)
  • Pharmaceuticals (13)
  • Pseudoscience (1)
  • Research (75)
  • Suicide (2)
  • Support and networking (8)
  • Tips and advice (11)
  • Trans Health (8)
  • Uncategorized (10)
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Syndication

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Recent Post

  • Worldwide Endo March
  • The Endometriosis Summit
  • Corinne Foxx details experience with endometriosis, producing film about the condition
  • Bindi Irwin is shining a light on this painful, underdiagnosed condition
  • Trans, gender-diverse people with endometriosis fight ‘double battle’ against pain and lack of recognition
  • Transgender People with Endometriosis Often Suffer in Silence
  • Font issues with the website
  • France formally recognises endometriosis as ‘long-term condition’
  • Worldwide Endometriosis March
  • 10 Research-Backed Truths About Endometriosis

Recent Comments

  • admin in Honouring Henrietta Lacks
  • Kathy in A Breakthrough In A Disease That No One Likes To T…
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  • admin in Peggy Santa Maria - a saint to endo sisters!
  • That Girl with Endo in Peggy Santa Maria - a saint to endo sisters!
  • I Will Not Suffer In Silence »… in Peggy Santa Maria - a saint to endo sisters!
  • That Girl with Endo in Peggy Santa Maria - a saint to endo sisters!
  • steph in Peggy Santa Maria - a saint to endo sisters!
  • JennM in Peggy Santa Maria - a saint to endo sisters!
  • I Will Not Suffer In Silence »… in Genetic variants on chromosome 1 and 7 more likely…
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