Living With Endometriosis

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26

Feb

1 in 10 women have endometriosis worldwide

Posted by steph  Published in Endometriosis Awareness

Did you know? 1 in 10 women worldwide suffer from endometriosis. Click the image below to see what it is like to live with endometriosis. Click here for a theme song to go with the photo gallery. Personally, I like the UB40 and 808 State remix.

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25

Feb

Family Enters NASCAR Race to Raise Endometriosis Awareness

Posted by steph  Published in Endometriosis Awareness, News article

Salina Family Enters NASCAR Race to Raise Endometriosis Awareness Posted: Feb 25, 2010 3:36 PM (SALINA, Kan.) A Salina teen is diagnosed with a disease that causes extreme chronic pain. Endometriosis affects millions of women each year, but the cause is still a mystery. Now one family hopes to raise awareness. Shellby Humbargar is a […]

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23

Feb

Endometriosis, the life-wrecker doctors dismiss as period pain

Posted by steph  Published in Endometriosis Awareness, News article

Endometriosis, the life-wrecker doctors dismiss as period pain By Caitlin Davies – dailymail.co.uk Last updated at 11:29 PM on 15th February 2010 Sometimes the pain was so bad Ruth Forwood, then aged just 12, would nearly pass out. ‘It felt like someone was stabbing me inside,’ she recalls. When she was 13, she went to […]

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20

Feb

Woman to jump from plane for endometriosis awareness!

Posted by steph  Published in Endometriosis Awareness, News article

Would you jump 10,000 feet from an airplane to call attention to an incurable illness? That’s exactly what Abigail Smith will be doing on March 13, 2010 (her date has been rescheduled and will be announced again soon)! Abigail has endometriosis, an excruciating condition whereby the lining of the uterus travels and embeds in surrounding […]

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20

Feb

Neuroendocrine cells in normal lining of uterus endometrium “probably play some role in the development or symptoms of endometriosis”

Posted by steph  Published in Research

Neuroendocrine cells in eutopic endometrium of women with endometriosis (Research from Qilu Hospital of Shandong University in the area of endometriosis described.(Report) Article from: Women’s Health Weekly Article date: January 28, 2010 ) Data detailed in ‘Neuroendocrine cells in eutopic endometrium of women with endometriosis’ have been presented. “Endometriosis is a common gynaecological disease, but […]

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20

Feb

Aromatase Inhibitors: Potential Reproductive Implications

Posted by steph  Published in Research

A year ago, I found and posted some old research articles about aromatase and endometriosis. In the first article, dated May 2004, it reads, “Aromatase P450 (P450arom) is the key enzyme for biosynthesis of estrogen, which is an essential hormone for the establishment and growth of endometriosis. There is no detectable aromatase enzyme activity in […]

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20

Feb

Endometriosis cannot be predicted by hormonal effects

Posted by steph  Published in Outrageous, Pharmaceuticals, Research

Endometriosis not predicted by hormone effect Internal Medicine News, Feb 1, 2008 by Miriam E. Tucker WASHINGTON — Response to hormonal therapy does not accurately predict whether a patient has endometriosis, Dr. Todd R. Jenkins reported at the annual meeting of the AAGL. Laparoscopy has long been considered the standard for diagnosing endometriosis. However, a […]

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19

Feb

Endometriosis-associated ovarian cancer: A ten-year cohort study

Posted by steph  Published in Cancer risk, Research

Endometriosis-associated ovarian cancer: A ten-year cohort study of women living in the Estrie Region of Quebec, Canada Published on: 2010-01-19 Objectives: Endometriosis has been believed to increase the risk of developing ovarian cancer, but recent data supporting this hypothesis are lacking. The aim of this study was to verify whether the incidence of endometriosis, ovarian […]

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19

Feb

Possible link between lining of uterus, endometriosis and ovarian cancer

Posted by steph  Published in Cancer risk, Research

Expression of interleukin-1 (IL-1) ligands system in the most common endometriosis-associated ovarian cancer subtypes Published on: 2010-01-28 Objectives: Endometrioid carcinoma of the ovary is one of the most types of epithelial ovarian cancer associated to endometrioisis. Endometrioid tumors as well as endometriotic implants are characterized by the presence of epithelial cells, stromal cells, or a […]

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10

Feb

Antiangiogenic drugs to be developed to curb rogue cell growth in endometriosis?

Posted by steph  Published in Research

In a study published January 19, 2010, researchers let us know that previous studies show for a fact that angiogenesis is largely found in rectosigmoid endometriosis (found near the sigmoid colon and the upper part of the rectum), and it embeds deeply. In this new study, researchers experimental with peritoneal endometriosis (endo found in the […]

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Don't Have Endo? Please Read!

  • The Letter From Survivors

  • Public Service Announcement!

  • We Are Not Seekers

  • What I Should Have Said

  • "...but have you tried..."

  • Sick Humor: The top ten worst
    suggestions commonly given to
    someone with a chronic illness


  • Our Life In Comics

Important Pages

  • Endopaedia

  • Research and Medical Journals

  • Myths about Endometriosis

  • YouTube Video Blogs of Yore

  • Applying For Disability

  • Be Aware!

  • Endo and Menopause

  • Is Endo A Cancer?

  • Job Discrimination

  • Fallen Endo Siblings

Mankoski Pain Scale

0 - Pain Free

1 - Very minor annoyance - occasional
minor twinges. No medication needed.

2 - Minor Annoyance - occasional
strong twinges.
No medication needed.

3 - Annoying enough to be distracting.
Mild painkillers take care of it.
(Aspirin, Ibuprofen.)

4 - Can be ignored if you are really
involved in your work, but still
distracting. Mild painkillers remove
pain for 3-4 hours.

5 - Can't be ignored for more than 30
minutes. Mild painkillers ameliorate
pain for 3-4 hours.

6 - Can't be ignored for any length of
time, but you can still go to work and
participate in social activities.
Stronger painkillers (Codeine,
narcotics) reduce pain for 3-4 hours.

7 - Makes it difficult to concentrate,
interferes with sleep. You can still
function with effort. Stronger
painkillers are only partially effective.

8 - Physical activity severely limited.
You can read and converse with effort.
Nausea and dizziness set in as factors
of pain.

9 - Unable to speak. Crying out or
moaning uncontrollably - near delirium.

10 - Unconscious. Pain makes you
pass out.

© Andrea Mankoski

Organisations

  • Endo Black

  • endoQueer

  • The Endo Coalition

  • endometriosis.org

  • World Endometriosis Society

  • Endometriosis UK

  • World Endometriosis Foundation

  • Center for Endometriosis Care

  • Endometriosis Research Center

  • Endometriosis Association

  • Endometriosis Foundation of America

  • Worldwide EndoMarch

Symptom Tracking

  • CureTogether.com
    - Compare symptoms with people like you,
    Find treatments that work, optimize your
    health


  • PatientsLikeMe.com
    - Real-time pain mapping, monitoring,
    analysis. Community.


  • MyMonthlyCycles.com
    - free personalized tools to track, monitor,
    and manage your mo nthly menstrual cycles!

Endo Products


  • Naturally Hip
    - cloth menstrual pads

  • EndoFEMM
    - Microwavable corn-filled cloth heating
    pads. (mention you saw them here and get
    10% off your order!)


  • Endo Awareness swag
    - As found on Etsy

Blogroll (archival from 2007)

  • Antonia's Epic Endo Journey
  • Canadian Girl In Pain
  • Chances Our
  • Chronic Healing
  • Dear Thyroid
  • Endo Empowered
  • Endo Friendo
  • Endo Times
  • Endo Trauma
  • Endo Writer
  • Endometriosis: The Silent Life Sentence
  • Field Notes from an Evolutionary Psychologist
  • Foxy In The Waiting Room
  • Get Well blog
  • I Will Not Suffer In Silence
  • Lupron Journal
  • My Endometriosis Story – Lily Williams Art
  • My Journey With Endometriosis
  • My Life With Endo & Infertility
  • Pop Goes The Feasible
  • Reading List & Resources for chronic pain, including endometriosis
  • Resilience
  • Sallie Speaks
  • SansUterus
  • Surviving Endo
  • The Ins and Outs of Endo
  • Whispered Words …
  • Yellow Paper Dress

Categories

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  • Endometriosis Awareness (153)
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  • Heart risk (1)
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  • Research (75)
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  • Trans Health (8)
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Syndication

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Recent Post

  • 3rd Endo Black Advocate & Allies Conference
  • Worldwide Endo March
  • The Endometriosis Summit
  • Corinne Foxx details experience with endometriosis, producing film about the condition
  • Bindi Irwin is shining a light on this painful, underdiagnosed condition
  • Trans, gender-diverse people with endometriosis fight ‘double battle’ against pain and lack of recognition
  • Transgender People with Endometriosis Often Suffer in Silence
  • Font issues with the website
  • France formally recognises endometriosis as ‘long-term condition’
  • Worldwide Endometriosis March

Recent Comments

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  • Kathy in A Breakthrough In A Disease That No One Likes To T…
  • Jenn in Unbelievable doctors in the 21st century
  • admin in Peggy Santa Maria - a saint to endo sisters!
  • That Girl with Endo in Peggy Santa Maria - a saint to endo sisters!
  • I Will Not Suffer In Silence »… in Peggy Santa Maria - a saint to endo sisters!
  • That Girl with Endo in Peggy Santa Maria - a saint to endo sisters!
  • steph in Peggy Santa Maria - a saint to endo sisters!
  • JennM in Peggy Santa Maria - a saint to endo sisters!
  • I Will Not Suffer In Silence »… in Genetic variants on chromosome 1 and 7 more likely…
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