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  • Filing for Medicare health benefits
  • Filing for Social Security Disability Insurance (SSDI)
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  • In The News – Pharmaceuticals Can Be Dangerous
  • Is Endometriosis A Cancer?
  • Job Discrimination
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  • Pharmaceutically-run Marketing Websites
  • Public Service Announcement
  • Research and Medical Journals
  • Surgery
  • We Are Not Seekers
  • What I Should Have Said
  • What Is Endometriosis?
  • YouTube – Endometriosis Video Blogs of Yore

13

Mar

Endometriosis of the lung

Posted by steph  Published in Research

Back in March, 2009, I alluded to research done in the 1960s regarding lung endometriosis. Now I want to share one of the published research papers from that time. Endometriosis of the lung A case report and brief review of the literature Tatiana Jelihovsky and A.F. Grant From the Departmenit of Pathology and the Page […]

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12

Mar

South Africa: Endometriosis Ruins Lives

Posted by steph  Published in Endometriosis Awareness, News article

South Africa: Endometriosis Ruins Lives 30 JANUARY 2012 “As women we believe that pain is a natural part of life, so we try and cope on our own, and we suffer in silence,” said Lotus-FM radio personality Pauline Sangham (42) who lived with severe pain for years before she was diagnosed and treated for endometriosis-a […]

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9

Mar

In Chronic Pelvic Pain, Consider Pudendal Neuralgia

Posted by steph  Published in News article, Pain management

In Chronic Pelvic Pain, Consider Pudendal Neuralgia by Clayton Simmons ISSUE: JUNE 2010 | VOLUME: 8:06 Pudendal neuralgia may represent a promising, although complex, avenue for understanding and treating certain forms of chronic pelvic pain. In a presentation at the annual meeting of the International Anesthesia Research Society in March, John S. McDonald, MD, chair […]

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6

Mar

Canadian women not taken seriously when asking for laparoscopy to help manage pain of endometriosis

Posted by steph  Published in Doctors, Government-involvement, Insurance industry, Medical industry, News article, Outrageous

Canadian endo sister forced to wait for laparoscopy – told she will “not suffer death or irreversible tissue damage”, so she should stop “doctor shopping, since this was a waste of both health-care resources and her time.” She was of course in agonising pain. Turns out once she came to the States to get surgery […]

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5

Mar

Endometriosis Has a Significant Effect on Women’s Work Productivity

Posted by steph  Published in Endometriosis Awareness, Research

ESHRE: Endometriosis Has a Significant Effect on Women’s Work Productivity, First Worldwide Study Finds June 28, 2010 04:02 AM Eastern Daylight Time Rome, Italy: The first worldwide study of the societal impact of endometriosis has found a significant loss of work productivity among those women who suffer from the condition, a researcher told the 26th […]

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4

Mar

Abnormalities on chromosomes 1 and 9 involved in one’s predisposition to endometriosis

Posted by steph  Published in Biology, Research

A genome-wide association study identifies genetic variants in the CDKN2BAS locus associated with endometriosis in Japanese. Nat Genet. 2010 Aug;42(8):707-10. Epub 2010 Jul 4. Uno S, Zembutsu H, Hirasawa A, Takahashi A, Kubo M, Akahane T, Aoki D, Kamatani N, Hirata K, Nakamura Y. Source Institute of Medical Science, The University of Tokyo, Tokyo, Japan. […]

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3

Mar

NIH Study shows caffeine consumption linked to estrogen changes

Posted by steph  Published in Biology, Diet, Research

Because endometriosis is known to thrive on estrogen, I thought it prudent to post this research article. NIH Study shows caffeine consumption linked to estrogen changes Thursday, January 26, 2012 Contact: Robert Bock or John McGrath Moderate caffeine intake associated with higher level for Asians, lower for whites Asian women who consumed an average of […]

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2

Mar

Endo sister Susan Sarandon loses her tact

Posted by steph  Published in Outrageous

Susan Sarandon’s Pregnancy Advice Won’t Work for Everyone Posted by Nicole Fabian-Weber on February 13, 2012 at 10:55 AM Susan Sarandon has the answer for any women having a hard time getting pregnant — especially those diagnosed with endometriosis: “Eat and drink and f**k and you’ll probably get pregnant.” Hear that, ladies? It’s as simple […]

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1

Mar

Is endometriosis the cause or a by-stander when it comes to pain?

Posted by steph  Published in Featured

ASRM2011: Is endometriosis the cause or a by-stander when it comes to pain? ORLANDO, 17 OCTOBER 2011 | BY LONE HUMMELSHOJ The 67th Annual Meeting of the ASRM kicked off with a two-hour plenary session on endometriosis, addressing controversial issues surrounding the disease. Is endometriosis responsible for all pain – and if so, how do […]

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Don't Have Endo? Please Read!

  • What Is Endometriosis?

  • The Letter From Survivors

  • Public Service Announcement!

  • We Are Not Seekers

  • What I Should Have Said

  • "...but have you tried..."

  • Sick Humor: The top ten worst
    suggestions commonly given to
    someone with a chronic illness


  • Our Life In Comics

Important Pages

  • Endopaedia

  • Research and Medical Journals

  • Myths about Endometriosis

  • YouTube Video Blogs of Yore

  • Applying For Disability

  • Be Aware!

  • Endo and Menopause

  • Is Endo A Cancer?

  • Job Discrimination

  • Fallen Endo Siblings

Mankoski Pain Scale

0 - Pain Free

1 - Very minor annoyance - occasional
minor twinges. No medication needed.

2 - Minor Annoyance - occasional
strong twinges.
No medication needed.

3 - Annoying enough to be distracting.
Mild painkillers are effective.
(Aspirin, Ibuprofen.)

4 - Can be ignored if you are really
involved in your work, but still
distracting. Mild painkillers relieve
pain for 3-4 hours.

5 - Can't be ignored for more than 30
minutes. Mild painkillers reduce
pain for 3-4 hours.

6 - Can't be ignored for any length of
time, but you can still go to work and
participate in social activities.
Stronger painkillers (Codeine,
Vicodin) reduce pain for 3-4 hours.

7 - Makes it difficult to concentrate,
interferes with sleep. You can still
function with effort. Strongest
painkillers relieve pain (Oxycontin,
Morphine)

8 - Physical activity severely limited.
You can read and converse with effort.
Nausea and dizziness set in as factors
of pain. Stronger painkillers are
minimally effective. Strongest painkillers
reduce pain for 3-4 hours.

9 - Unable to speak. Crying out or
moaning uncontrollably - near delirium.
Strongest painkillers are only partially
effective.

10 - Unconscious. Pain makes you
pass out. Strongest painkillers are only
partially effective.

© Andrea Mankoski

Organisations

  • Endo Black

  • endoQueer

  • The Endo Coalition

  • endometriosis.org

  • World Endometriosis Society

  • Endometriosis UK

  • World Endometriosis Foundation

  • Center for Endometriosis Care

  • Endometriosis Research Center

  • Endometriosis Association

  • Endometriosis Foundation of America

  • Worldwide EndoMarch

  • Worldwide Organisations and Support Networks (ongoing update)

Endo Products


  • Naturally Hip
    - cloth menstrual pads

  • Pelvic Pain Solutions
    - Microwavable corn-filled cloth
    heating pads.


  • Endo Awareness swag
    - As found on Etsy

Archival Blogroll

 (Blogs I connected with from the early days)
  • Antonia's Epic Endo Journey
  • Canadian Girl In Pain
  • Chances Our
  • Chronic Healing
  • Dear Thyroid
  • Endo Empowered
  • Endo Friendo
  • Endo Times
  • Endo Trauma
  • Endo Writer
  • Endometriosis: The Silent Life Sentence
  • Field Notes from an Evolutionary Psychologist
  • Foxy In The Waiting Room
  • Get Well blog
  • I Will Not Suffer In Silence
  • Lupron Journal
  • My Endometriosis Story – Lily Williams Art
  • My Journey With Endometriosis
  • My Life With Endo & Infertility
  • Pop Goes The Feasible
  • Reading List & Resources for chronic pain, including endometriosis
  • Resilience
  • Sallie Speaks
  • SansUterus
  • Surviving Endo
  • The Ins and Outs of Endo
  • Whispered Words …
  • Yellow Paper Dress

Categories

  • Administrative (12)
  • Alternative medicine (4)
  • Autoimmune (5)
  • Biographies (13)
  • Biology (15)
  • Black Endo Health (7)
  • Books (3)
  • Cancer risk (19)
  • Centers for Disease Control (1)
  • Chronic Pain (7)
  • COVID-19 (2)
  • Diet (9)
  • Doctors (7)
  • Endometriosis Awareness (183)
  • Featured (48)
  • Food and Drug Administration (6)
  • Government-involvement (9)
  • Heart risk (1)
  • Hormone Replacement Therapy (HRT) (3)
  • Hysterectomy (5)
  • Infertility (1)
  • Inspirational (3)
  • Insurance industry (3)
  • Malpractice (4)
  • Medical industry (5)
  • Menopause (1)
  • News article (107)
  • Outrageous (20)
  • Pain management (3)
  • Pharmaceuticals (13)
  • Pseudoscience (1)
  • Research (76)
  • Suicide (2)
  • Support and networking (8)
  • Tips and advice (11)
  • Trans Health (10)
  • Uncategorized (10)

Archives

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  • March 2009 (38)
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  • January 2008 (1)

Recent Post

  • Trans Endo Siblings – I see you.
  • Are redheads more prone to Endometriosis?
  • Did you know? Autoimmune Diseases Tend To Cluster
  • Finding Others Like Us On The Web
  • Research Studies of Endometriosis and the COVID-19 Pandemic
  • Endometriosis In Transgender Men Is Still Poorly Understood
  • Stats on Endometriosis
  • Worldwide Virtual Endometriosis Conference
  • Did you know? Racism led to the belief that Endometriosis only develops in white career women who delay childbirth.
  • The Mankoski Pain Scale

Recent Comments

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