The Worldwide Endometriosis March is LIVE now at:
- Home
- “…but have you tried…”
- About Me
- Alternative Medicine
- Applying for Disability
- Be Aware
- Endometriosis and Menopause
- Fallen Endo Siblings – A Memorial Page
- Filing for Medicare health benefits
- Filing for Social Security Disability Insurance (SSDI)
- Hormonal Suppression
- In The News – Pharmaceuticals Can Be Dangerous
- Is Endometriosis A Cancer?
- Job Discrimination
- March is National Endometriosis Awareness Month
- Myths About Endometriosis
- Old Wives’ Tales
- Online Support For Endometriosis
- Organisations
- Our Life In Comics
- Pain Medication
- Pharmaceutically-run Marketing Websites
- Public Service Announcement
- Research and Medical Journals
- Surgery
- We Are Not Seekers
- What I Should Have Said
- What Is Endometriosis?
- YouTube – Endometriosis Video Blogs of Yore
26
Mar
no comment
13
Mar
10 Research-Backed Truths About Endometriosis
Posted by admin Published in Black Endo Health, Endometriosis Awareness, Featured, News article, Research, Trans Health10 Research-Backed Truths About EndometriosisWhat Endometriosis Patients Want Healthcare Professionals to KnowKristina Kasparian, PhDMarch 13, 2022 If you read that title again, it may seem strange to you. Patients wanting physicians to know more about a medical condition? Isn’t that a little backward? Although this debilitating health condition afflicts nearly 200 million individuals globally,1,2 endometriosis […]
9
Mar
Summary: “It’s a condition that the main symptom is pain and pain, as we know, it can often get dismissed in women and gender diverse people” “Despite its prevalence, experts say it can take anywhere from five to 10 years to get a diagnosis and receive treatment — which can range from hormone treatment to […]
6
Mar
Endometriosis pain and epithelial neutrophil activating peptide-78 levels
Posted by admin Published in ResearchEndometriosis pain and epithelial neutrophil activating peptide-78 levels Published: 25 February 2022Barbara Gardella, Mattia Dominoni, Andrea Gritti, Anna Arrigo, Silvia Antonucci, Giulia Vittoria Carletti, Valentina Musacchi & Giampiero Pietrocola Abstract Endometriosis is a chronic gynecological disorder involved in the pathogenesis of chronic pelvic pain, based on a probable up regulation of the inflammatory system. The objective of the study is to investigate the peritoneal […]
2
Mar
I first heard about Henrietta Lacks through a friend three years ago when she shared a news article about Johns Hopkins naming a new research building after her. In that article, I learned that “Henrietta Lacks was a young mother of five from eastern Baltimore County who, despite radiation treatment at the Johns Hopkins Hospital, died in […]
17
Apr
January 7, 2022 Followup! The results of the survey above were published in October 2021: Characterizing menstrual bleeding changes occurring after SARS-CoV-2 vaccination Menstrual bleeding after SARS-CoV-2 vaccinationAuthors: Katharine MN Lee, Eleanor J Junkins, Urooba A Fatima, Maria L Cox, Kathryn BH Clancy October 12, 2021 Abstract: Many people began sharing that they experienced unexpected […]
31
Mar
“Endometriosis knows no gender. Everyone in the endo community deserves to feel respected, heard and welcomed just as they are. We see you and are here for you.” Find endoQueer on Instagram, Facebook, Twitter and their website. I am a one-person show at LivingWithEndometriosis, and I agree with and embrace what endoQueer has to say. […]
28
Mar
Do hormone therapies cure endometriosis?
Posted by admin Published in Endometriosis Awareness, FeaturedFact or Myth? “Hormone therapy cures endometriosis.” MYTH! endometriosis.org writes:“Synthetic hormonal drugs like the pill, Provera, Danazol and Zoladex have been used for many years to ‘treat’ endometriosis. However, these hormonal treatments do not have any long-term effect on the disease itself. They do temporarily suppress (quieten) the symptoms, but only while the drugs are […]
27
Mar
Shout out to Endometriosis Network Canada!
Posted by admin Published in Endometriosis Awareness, Featured, Trans HealthDuring today’s segment of the Worldwide Endometriosis March, Katie Luciani of The Endometriosis Network Canada echoed my sentiments back on March 2, 2021 about gendered language, only they’ve been saying it for almost a year now! <3
27
Mar
Worldwide Endometriosis March – Day 2
Posted by admin Published in Endometriosis Awareness, FeaturedHappening Now! The virtual Worldwide Endometriosis March! DAY 2 – PART 1: DAY 2 – PART 2:
Search
Blog Feed
| S | M | T | W | T | F | S |
|---|---|---|---|---|---|---|
| 1 | 2 | |||||
| 3 | 4 | 5 | 6 | 7 | 8 | 9 |
| 10 | 11 | 12 | 13 | 14 | 15 | 16 |
| 17 | 18 | 19 | 20 | 21 | 22 | 23 |
| 24 | 25 | 26 | 27 | 28 | 29 | 30 |
| 31 | ||||||
Don't Have Endo? Please Read!
Important Pages
Mankoski Pain Scale
0 - Pain Free
1 - Very minor annoyance -
occasional
minor twinges.
No medication needed.
2 - Minor Annoyance -
occasional
strong twinges.
No medication needed.
3 - Annoying enough to be distracting.
Mild painkillers take care of it.
(Aspirin, Ibuprofen.)
4 - Can be ignored if you are really
involved in your work, but still
distracting. Mild painkillers remove
pain for 3-4 hours.
5 - Can't be ignored for more than 30
minutes. Mild painkillers ameliorate
pain for 3-4 hours.
6 - Can't be ignored for any length of
time, but you can still go to work and
participate in social activities.
Stronger painkillers (Codeine,
narcotics) reduce pain for 3-4 hours.
7 - Makes it difficult to concentrate,
interferes with sleep. You can still
function with effort. Stronger
painkillers
are only partially effective.
8 - Physical activity severely limited.
You can read and converse with effort.
Nausea and dizziness set in as factors
of pain.
9 - Unable to speak. Crying out or
moaning
uncontrollably - near delirium.
10 - Unconscious. Pain makes you
pass out.
© Andrea Mankoski
Organisations
Endo Products
- Naturally Hip
- cloth menstrual pads
- Pelvic Pain Solutions
- Microwavable corn-filled cloth
heating pads.
- Endo Awareness swag
- As found on Etsy
Archival Blogroll
(Blogs I connected with from the early days)- Antonia's Epic Endo Journey
- Canadian Girl In Pain
- Chances Our
- Chronic Healing
- Dear Thyroid
- Endo Empowered
- Endo Friendo
- Endo Times
- Endo Trauma
- Endo Writer
- Endometriosis: The Silent Life Sentence
- Field Notes from an Evolutionary Psychologist
- Foxy In The Waiting Room
- Get Well blog
- I Will Not Suffer In Silence
- Lupron Journal
- My Endometriosis Story – Lily Williams Art
- My Journey With Endometriosis
- My Life With Endo & Infertility
- Pop Goes The Feasible
- Reading List & Resources for chronic pain, including endometriosis
- Resilience
- Sallie Speaks
- SansUterus
- Surviving Endo
- The Ins and Outs of Endo
- Whispered Words …
- Yellow Paper Dress
Categories
- Administrative (12)
- Alternative medicine (4)
- Autoimmune (5)
- Biographies (13)
- Biology (15)
- Black Endo Health (7)
- Books (3)
- Cancer risk (19)
- Centers for Disease Control (1)
- Chronic Pain (7)
- Diet (9)
- Doctors (7)
- Endometriosis Awareness (154)
- Featured (47)
- Food and Drug Administration (6)
- Government-involvement (9)
- Heart risk (1)
- Hormone Replacement Therapy (HRT) (3)
- Hysterectomy (5)
- Infertility (1)
- Inspirational (3)
- Insurance industry (3)
- Malpractice (4)
- Medical industry (5)
- Menopause (1)
- News article (107)
- Outrageous (20)
- Pain management (3)
- Pharmaceuticals (13)
- Pseudoscience (1)
- Research (75)
- Suicide (2)
- Support and networking (8)
- Tips and advice (11)
- Trans Health (9)
- Uncategorized (10)
Archives
- March 2023 (6)
- March 2022 (9)
- April 2021 (1)
- March 2021 (15)
- November 2020 (1)
- March 2020 (2)
- January 2020 (2)
- March 2019 (7)
- March 2018 (8)
- March 2017 (12)
- April 2016 (1)
- March 2016 (8)
- February 2016 (1)
- August 2015 (1)
- March 2015 (17)
- December 2014 (1)
- July 2014 (1)
- April 2014 (2)
- March 2014 (3)
- May 2013 (1)
- March 2013 (31)
- July 2012 (1)
- April 2012 (2)
- March 2012 (9)
- February 2012 (5)
- January 2012 (2)
- December 2011 (1)
- November 2011 (1)
- August 2011 (1)
- July 2011 (1)
- March 2011 (3)
- January 2011 (5)
- December 2010 (3)
- November 2010 (1)
- October 2010 (1)
- September 2010 (2)
- August 2010 (2)
- July 2010 (2)
- May 2010 (1)
- April 2010 (8)
- March 2010 (4)
- February 2010 (10)
- January 2010 (2)
- December 2009 (1)
- November 2009 (4)
- October 2009 (2)
- September 2009 (3)
- August 2009 (4)
- June 2009 (2)
- April 2009 (2)
- March 2009 (38)
- February 2009 (9)
- January 2009 (15)
- December 2008 (12)
- November 2008 (8)
- January 2008 (1)
Recent Post
- Transgender Day Of Visibility
- 3rd Endo Black Advocate & Allies Conference
- Worldwide Endo March
- The Endometriosis Summit
- Corinne Foxx details experience with endometriosis, producing film about the condition
- Bindi Irwin is shining a light on this painful, underdiagnosed condition
- Trans, gender-diverse people with endometriosis fight ‘double battle’ against pain and lack of recognition
- Transgender People with Endometriosis Often Suffer in Silence
- Font issues with the website
- France formally recognises endometriosis as ‘long-term condition’
Recent Comments
- admin in Honouring Henrietta Lacks
- Kathy in A Breakthrough In A Disease That No One Likes To T…
- Jenn in Unbelievable doctors in the 21st century
- admin in Peggy Santa Maria - a saint to endo sisters!
- That Girl with Endo in Peggy Santa Maria - a saint to endo sisters!
- I Will Not Suffer In Silence »… in Peggy Santa Maria - a saint to endo sisters!
- That Girl with Endo in Peggy Santa Maria - a saint to endo sisters!
- steph in Peggy Santa Maria - a saint to endo sisters!
- JennM in Peggy Santa Maria - a saint to endo sisters!
- I Will Not Suffer In Silence »… in Genetic variants on chromosome 1 and 7 more likely…