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  • YouTube – Endometriosis Video Blogs of Yore

17

Apr

YouTube – Endometriosis Video Blogs of Yore

Posted by steph 

After my surgical diagnosis of stage III endometriosis in February, 2007, I began seeking out other people on the web who have endometriosis. I found the following folks on YouTube, and I shared their video blogs here. The first four people, though they may not know it, are responsible for giving me the courage to start my own YouTube channel to video blog about endometriosis.

Some of the YouTube authors below deal with endometriosis full time, while others video blog about endo every so often. That is likely why you will either be directed to a channel or a specific video upon clicking on the links below.

If you cannot immediately see why you are at someone’s channel, look around until you find the endometriosis videos – sometimes the endo videos are not consecutive, but there may be several of important note on one’s channel.

These video bloggers of yore are your Endo Elders. Without them, we would not be here. They gave me the courage to speak up publicly about Endometriosis. In turn, I gave people the courage, and so on.

The original start to seeking out fellow Endometriosis Siblings as my blogging journey began in 2007 are:

Frozen Fire Fairy (only has one endo vid left up)

FrozenFireFairy

 
SudseyD (no longer has endo vids up)

sudseyD

 
carrieml82

carrieml82

 
coffeetalkwc

coffeetalkwc

 
mystikallady18 (no longer has endo vids up)

mystikallady18

 
DianadeAvila (formerly gkygrl)

gkygrl2

 
stephlwe (Steph Living With Endometriosis) – My YouTube channel

stephlwe

 
JeanneEndo (Jeanne also had a blog called chronichealing.com which doesn’t appear to exist anymore)

jeanneendo

 
EndoSteph (also posts endo related stuff at combustication07. She is the funniest endo video blogger I have seen! EndoSteph inspires me to remember to have more humour in my life when dealing with the topic of endometriosis!)

endosteph

 
constantine319 (no longer has a YouTube channel)

constantine319

 
valeriasennas

valeriasennas

 
jaharshman (no longer has endo vids up)

jaharshman

 
A Spiral Dance (Formerly Amanda’s Patch)
Please also check out her web blog, called Amanda’s Patch!

amandaspatch

 
To Dream Is A Gift

todreamisagift

 
MyHealingJourney1

myhealingjourney1

 
Danica Petreska – Endometriosis – My Story

DanicaPetreska

 
Red’s Channel – Say NO to Essure!

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Don't Have Endo? Please Read!

  • What Is Endometriosis?

  • The Letter From Survivors

  • Public Service Announcement!

  • We Are Not Seekers

  • What I Should Have Said

  • "...but have you tried..."

  • Sick Humor: The top ten worst
    suggestions commonly given to
    someone with a chronic illness


  • Our Life In Comics

Important Pages

  • Endopaedia

  • Research and Medical Journals

  • Myths about Endometriosis

  • YouTube Video Blogs of Yore

  • Applying For Disability

  • Be Aware!

  • Endo and Menopause

  • Is Endo A Cancer?

  • Job Discrimination

  • Fallen Endo Siblings

Mankoski Pain Scale

0 - Pain Free

1 - Very minor annoyance - occasional
minor twinges. No medication needed.

2 - Minor Annoyance - occasional
strong twinges.
No medication needed.

3 - Annoying enough to be distracting.
Mild painkillers are effective.
(Aspirin, Ibuprofen.)

4 - Can be ignored if you are really
involved in your work, but still
distracting. Mild painkillers relieve
pain for 3-4 hours.

5 - Can't be ignored for more than 30
minutes. Mild painkillers reduce
pain for 3-4 hours.

6 - Can't be ignored for any length of
time, but you can still go to work and
participate in social activities.
Stronger painkillers (Codeine,
Vicodin) reduce pain for 3-4 hours.

7 - Makes it difficult to concentrate,
interferes with sleep. You can still
function with effort. Strongest
painkillers relieve pain (Oxycontin,
Morphine)

8 - Physical activity severely limited.
You can read and converse with effort.
Nausea and dizziness set in as factors
of pain. Stronger painkillers are
minimally effective. Strongest painkillers
reduce pain for 3-4 hours.

9 - Unable to speak. Crying out or
moaning uncontrollably - near delirium.
Strongest painkillers are only partially
effective.

10 - Unconscious. Pain makes you
pass out. Strongest painkillers are only
partially effective.

© Andrea Mankoski

Organisations

  • Endo Black

  • endoQueer

  • The Endo Coalition

  • endometriosis.org

  • World Endometriosis Society

  • Endometriosis UK

  • World Endometriosis Foundation

  • Center for Endometriosis Care

  • Endometriosis Research Center

  • Endometriosis Association

  • Endometriosis Foundation of America

  • Worldwide EndoMarch

  • Worldwide Organisations and Support Networks (ongoing update)

Endo Products


  • Naturally Hip
    - cloth menstrual pads

  • Pelvic Pain Solutions
    - Microwavable corn-filled cloth
    heating pads.


  • Endo Awareness swag
    - As found on Etsy

Archival Blogroll

 (Blogs I connected with from the early days)
  • Antonia's Epic Endo Journey
  • Canadian Girl In Pain
  • Chances Our
  • Chronic Healing
  • Dear Thyroid
  • Endo Empowered
  • Endo Friendo
  • Endo Times
  • Endo Trauma
  • Endo Writer
  • Endometriosis: The Silent Life Sentence
  • Field Notes from an Evolutionary Psychologist
  • Foxy In The Waiting Room
  • Get Well blog
  • I Will Not Suffer In Silence
  • Lupron Journal
  • My Endometriosis Story – Lily Williams Art
  • My Journey With Endometriosis
  • My Life With Endo & Infertility
  • Pop Goes The Feasible
  • Reading List & Resources for chronic pain, including endometriosis
  • Resilience
  • Sallie Speaks
  • SansUterus
  • Surviving Endo
  • The Ins and Outs of Endo
  • Whispered Words …
  • Yellow Paper Dress

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Recent Post

  • Trans Endo Siblings – I see you.
  • Are redheads more prone to Endometriosis?
  • Did you know? Autoimmune Diseases Tend To Cluster
  • Finding Others Like Us On The Web
  • Research Studies of Endometriosis and the COVID-19 Pandemic
  • Endometriosis In Transgender Men Is Still Poorly Understood
  • Stats on Endometriosis
  • Worldwide Virtual Endometriosis Conference
  • Did you know? Racism led to the belief that Endometriosis only develops in white career women who delay childbirth.
  • The Mankoski Pain Scale

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