Real-Life Advice: How These Women Keep Their Endometriosis Under Control 18 February 2018 by TORI CROWTHER Endometriosis is a condition that affects one in 10 women in the UK, yet not many people know what it is, let alone know how to learn to live with it. Endometriosis is a condition in which pieces of […]
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Mar
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14
Mar
“Ask Me About My Uterus” insists that doctors take women’s pain seriously by Erin Blakemore March 11 Something was stabbing Abby Norman from the inside. As she took what she would later call the worst shower of her life, the college sophomore experienced a wave of excruciating abdominal pain. It would take years for doctors […]
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Mar
Why Do We Know So Little About Endometriosis? By Nina Bahadur March 7, 2018 4:00 pm Endometriosis is one of those things you’ve likely heard of but may not know much about. And that’s not your fault; the condition itself is sort of mysterious—even though as many as one in 10 women have it, according […]
6
Mar
I am sharing the article below because women with endometriosis have a higher chance of developing cancer of the ovaries, uterus, breast, brain and endocrine system, as well as Non-Hodgkin’s Lymphoma. It Looked Like a Familiar Case of Depression, but Could It Be Something Else? By LISA SANDERS, M.D. JAN. 18, 2018 “Have you been […]
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Mar
A life of pain: One Las Cruces woman’s journey with endometriosis
Posted by admin Published in Endometriosis Awareness, FeaturedA life of pain: One Las Cruces woman’s journey with endometriosis Diana Alba Soular, Las Cruces Sun-News March 1, 2018 Las Crucen Dolores “Doe” Gallegos, 47, suffers persistent, often-crippling pain, all thanks — or no thanks, rather — to a disorder called endometriosis. Gallegos was first diagnosed when she was a student at New Mexico State […]
3
Mar
Trust Your Instincts When It Comes to Your Health
Posted by admin Published in Endometriosis Awareness, Tips and adviceTrust Your Instincts When It Comes to Your Health November 6, 2017 by Shireen Hand Having lived with the symptoms of endometriosis for about 21 years now ― 12 of those diagnosed ― I’ve had my fair share of moments when I’ve felt that things do not feel quite right with my health. I’ve questioned a diagnosis […]
2
Mar
How Women on the Internet Help Me Navigate Endometriosis
Posted by admin Published in Endometriosis Awareness, Tips and adviceHow Women on the Internet Help Me Navigate Endometriosis February 28, 2018 by Tori Crowther After my endometriosis diagnosis, I honestly didn’t know where to start when it came to alternative treatment options. I’d already had surgery, which did help my symptoms, but I was by no means cured. I found myself needing more than […]
1
Mar
What Does Endometriosis Feel Like? February 26, 2018 by Shireen Hand It’s difficult to describe pain. When we talk to our doctors, we usually try to describe pain with words like “sharp†or “dull,†or by using a pain scale from one to 10. I’ve never felt I’ve been able to fully convey how endometriosis […]
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Don't Have Endo? Please Read!
Important Pages
Mankoski Pain Scale
0 - Pain Free
1 - Very minor annoyance -
occasional
minor twinges.
No medication needed.
2 - Minor Annoyance -
occasional
strong twinges.
No medication needed.
3 - Annoying enough to be distracting.
Mild painkillers are effective.
(Aspirin, Ibuprofen.)
4 - Can be ignored if you are really
involved in your work, but still
distracting. Mild painkillers relieve
pain for 3-4 hours.
5 - Can't be ignored for more than 30
minutes. Mild painkillers reduce
pain for 3-4 hours.
6 - Can't be ignored for any length of
time, but you can still go to work and
participate in social activities.
Stronger painkillers (Codeine,
Vicodin) reduce pain for 3-4 hours.
7 - Makes it difficult to concentrate,
interferes with sleep. You can still
function with effort. Strongest
painkillers relieve pain (Oxycontin,
Morphine)
8 - Physical activity severely limited.
You can read and converse with effort.
Nausea and dizziness set in as factors
of pain. Stronger painkillers are
minimally effective. Strongest painkillers
reduce pain for 3-4 hours.
9 - Unable to speak. Crying out or
moaning uncontrollably - near delirium.
Strongest painkillers are only partially
effective.
10 - Unconscious. Pain makes you
pass out. Strongest painkillers are only
partially effective.
© Andrea Mankoski
Organisations
- Endo Black
- endoQueer
- The Endo Coalition
- endometriosis.org
- World Endometriosis Society
- Endometriosis UK
- World Endometriosis Foundation
- Center for Endometriosis Care
- Endometriosis Research Center
- Endometriosis Association
- Endometriosis Foundation of America
- Worldwide EndoMarch
- Worldwide Organisations and Support Networks (ongoing update)
Endo Products
- Naturally Hip
- cloth menstrual pads
- Pelvic Pain Solutions
- Microwavable corn-filled cloth
heating pads.
- Endo Awareness swag
- As found on Etsy
Archival Blogroll
(Blogs I connected with from the early days)- Antonia's Epic Endo Journey
- Canadian Girl In Pain
- Chances Our
- Chronic Healing
- Dear Thyroid
- Endo Empowered
- Endo Friendo
- Endo Times
- Endo Trauma
- Endo Writer
- Endometriosis: The Silent Life Sentence
- Field Notes from an Evolutionary Psychologist
- Foxy In The Waiting Room
- Get Well blog
- I Will Not Suffer In Silence
- Lupron Journal
- My Endometriosis Story – Lily Williams Art
- My Journey With Endometriosis
- My Life With Endo & Infertility
- Pop Goes The Feasible
- Reading List & Resources for chronic pain, including endometriosis
- Resilience
- Sallie Speaks
- SansUterus
- Surviving Endo
- The Ins and Outs of Endo
- Whispered Words …
- Yellow Paper Dress
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Recent Post
- Trans Endo Siblings – I see you.
- Are redheads more prone to Endometriosis?
- Did you know? Autoimmune Diseases Tend To Cluster
- Finding Others Like Us On The Web
- Research Studies of Endometriosis and the COVID-19 Pandemic
- Endometriosis In Transgender Men Is Still Poorly Understood
- Stats on Endometriosis
- Worldwide Virtual Endometriosis Conference
- Did you know? Racism led to the belief that Endometriosis only develops in white career women who delay childbirth.
- The Mankoski Pain Scale
Recent Comments
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- Kathy in A Breakthrough In A Disease That No One Likes To T…
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- admin in Peggy Santa Maria - a saint to endo sisters!
- That Girl with Endo in Peggy Santa Maria - a saint to endo sisters!
- I Will Not Suffer In Silence »… in Peggy Santa Maria - a saint to endo sisters!
- That Girl with Endo in Peggy Santa Maria - a saint to endo sisters!
- steph in Peggy Santa Maria - a saint to endo sisters!
- JennM in Peggy Santa Maria - a saint to endo sisters!
- I Will Not Suffer In Silence »… in Genetic variants on chromosome 1 and 7 more likely…